About the EHC
About the EHC
The European Haemophilia Consortium (EHC) is an organisation that gathers the European national haemophilia patient associations (National Member Organisation) from 43 countries in Europe including all 27 EU Member States and the 2 candidate countries Croatia and Turkey. (members)
The EHC is working to reduce the burden of the disease on both the individual and on society. Its mission is to improve the quality of life of people with Haemophilia in Europe. The EHC facilitates consultation, discussion and dissemination of information on important issues related to bleeding disorders. (mission)
To this end the EHC engages in outreach and communication activities with policy makers, the medical profession, fellow patients and the public at large with a view to provide expertise and knowledge on how to live with the disease. In doing so the EHC in 2006 initiated an EU Advocacy Programme focussing especially on EU stakeholders and building the right platforms to communicate with them. Such platforms include the EHC's new website which was launched on World Haemophilia Day, 17 April 2007, as well as the introduction of EHC Round Table of Stakeholders to discuss topical issues concerning the EHC. (activities)
The EHC is grateful for the support it receives for the above activities from sponsors and other partners.
For organisations, associations, and other stakeholders interested in being or becoming a supporting partner, the EHC has in place a Policy on Financial Support and a Code of Conduct for the Round Tables. For more information on these and requests by interested parties, please email: 
office@ehc.eu
The EHC and the WFH both operate to advance the interests of Haemophilia patients. To this end those two organizations have a "memorandum of understanding (1.7 MB)" outlining their cooperation.