The Von Willebrand Disease (VWD) Working Group was set up in 2020 to lead the work of the ‘EHC VWD Platform for Europe.’ This platform will promote the formation of a European community of people with Von Willebrand Disease (PwVWD) enabling them to find support and ‘identity’ while also promoting, building and maintaining a network of VWD advocates in Europe. The Working Group will also aim to increase and improve diagnosis and treatment options nationally and to enable those VWD advocates to work at European level together with other European partners towards improving access to treatment and care for all PwVWD.

The EHC VWD Working Group is composed of:

Manon Degenaar-Dujardin
Dutch NMO

Milica Dimic
Serbian NMO

Marianna Kladi
Greek NMO

Donal Mc Cann
Irish NMO

Julia Rauscher
Austrian NMO

Joanne Traunter

Baiba Ziemele
Latvian NMO


The work of the EHC IWG is supported by Fiona Brennan, EHC Community Programmes Officer.