The Members of the European Parliament (MEP) Rare Bleeding Disorders Group was established as an informal entity back in 2015 due to politicians’ will to collaborate and address the challenges faced by the rare bleeding disorders community. The group’s objectives include further raising awareness on the topic, understanding where concrete actions are needed and identifying how its members can cooperate to improve the situation for patients in this field.
The first meeting of the group took place on March 24th 2015, with all five members, at the time present – Dr Paul Rübig (EPP, Austria), Dr Miroslav Mikolášik (EPP, Slovakia), Nessa Childers (S&D, Ireland), Heinz Becker (EPP, Austria) and Cristian-Silviu Buşoi (EPP, Romania). Since 2015, MEP Norica Nicolai (ALDE, Romania) has also become a member; in mid-2017, MEP Jana Žitňanská (ECR, Slovakia) joined the group.
On November 28th 2017, the group was officially formalized to give a further political thrust to their vision of improving the quality of life of people living with haemophilia and rare bleeding disorders.
Following the European elections of May 2019, several group members were no longer part of the European Parliament. The EHC wishes to thank them for their support of the work of the EHC.
The EHC is currently reaching out to new MEPs to join the informal group.
MEP Dr Biljana Borzan
Socialists and Democrats (S&D) Vice-President, Croatia
MEP Sirpa Pietikäinen
European People’s Party (EPP), Finland
MEP Jana Žitňanská
European Conservatives and Reformists Group (ECR), Slovakia