EHC Now! Round Table – The Future of Comprehensive Care and Outcomes in Haemophilia

Brussels, 20.2.19, Round Table The Future of Comprehensive Care and Outcomes in Haemophilia EHC is pleased to bring two perspectives from the near capacity Round Table today in Brussels The Honourable MEP Gesine Meissner and MEP Norica Nicolai graciously hosted a Round Table at the European Parliament. Ms. Meissner said, “The true value of the [...]

EHC Now! EHC/European Inhibitor Network and EAHAD Launch European Principles of Inhibitor Management in Video Format

EHC is pleased to launch European Principles of Inhibitor Management in video format. This production is the culmination of two years of collaborative work by multidisciplinary care professionals from the EHC and EAHAD networks, Including haematologists, physiotherapists, nurses and psychosocial experts.  New inhibitor treatment has become available since the production of these principles. Please watch [...]

EHC Now! EHC launches EHConversations, a new series of video talks. First series: gene therapy and haemophilia

The European Haemophilia Consortium is excited to announce the launch of EHConversations, informative talks that are patient-focused. The publication of the first series focuses on gene therapy and haemophilia from both patient and expert points of view. The five-part series has been created to help patients and the general public understand and demystify some of the [...]

EHC Now! EHC Youth Leadership Workshop – Alumni Event

For this week’s EHC Now! We report from the EHC Youth Leadership Workshop Alumni event that took place in Amsterdam, the Netherlands on 25-27 January 2019. Read the report of this event here and view a short visual summary of the event here!

EHC Now! First EHC Conference on Women and Rare Bleeding Disorders

The European Haemophilia Consortium (EHC) is proud to announce its first Conference on Women and Rare Bleeding Disorders. The event will be held on 24-26 May 2019 in Frankfurt, Germany. Registrations are now open! For more information and the programme, consult the EHC website.

EHC Now! A look back at EHC 2018 activities

For this week’s EHC Now! We have prepared a short video to look back at all our 2018 activities. We wish to thank of all of our volunteers and all of those who have made 2018’s work possible for their fantastic contribution. EHC Now! will take a short break for two weeks and we will […]

EHC Now! Third EHC Inhibitor Summit

In this week’s EHC Now! we give you a brief account of the EHC’s third Inhibitor Summit. From 6 to 9 December close to 150 people gathered in Barretstown, located an hour outside of Dublin in the beautiful Irish countryside. Their meeting: the European Inhibitor Summit, a yearly event organised by the European HaemophiliaConsortium (EHC) […]

EHC Now! Welcome Minette van der Ven, EHC’s new Vice-President Finance

For this week’s EHC Now! we introduce you to the EHC’s newly elected Vice-President Finance, Minette van der Ven. Read her story here.

EHC Now! New Youth Group in Macedonia

For this week’s edition of EHC Now! we hear from Hemolog, our Macedonian National Member Organisation (NMO) and their newly formed youth group. Read the full article here.

EHC Now! Round Table on Switching from Standard Therapies

For this week’s edition of EHC Now, we give you a quick overview on the EHC Round Table of Stakeholders held in Brussels on 20 November 2018 on the topic of ‘Switching from Standard Therapies: Where do Novel Therapies fit in?’ Read the article here.