Germany passes a new law on the distribution of haemophilia treatment products

Above, participants at the EHC February 2019 Round Table in which representatives from the German NMO presented on the new German legislative proposal.  Germany passes a new law that moves the distribution of haemophilia products from treatment centres to pharmacies A legislative proposal could have harmed haemophilia care in Germany, but thanks to the work [...]

EHC Now! EHC General Assembly elects a new President

On Friday 4 October, the General Assembly of the European Haemophilia Consortium (EHC) elected a new President, Mr Declan Noone. He replaces Mr Brian O'Mahony, who served for eight years as EHC President and 12 years as Steering Committee member. For this week, EHC Now! we give you a farewell message from Brian O'Mahony and [...]

EHC Now! EHC releases the second edition of 2019 of its New Products Newsletter

The European Haemophilia Consortium (EHC) releases today another edition of its newsletter on 'Novel treatments in haemophilia and other bleeding disorders: A periodic EHC review.' This publication comes ahead of the EHC’s 32nd scientific conference taking place on 4-6 October in Skopje, North Macedonia. Through this document, prepared by the EHC New Products Review (NPR) [...]

EHC Now! Navigating through a transformed European landscape

Taking stock: the European elections In May 2019 the citizens of the European Union cast their vote and chose a new European Parliament. With the highest turnout in the last twenty years - slightly over 50% - these elections featured a general rebuff of traditional mainstream parties. A much-feared move to the right did not [...]

EHC Now! NMO summer camps

To mark the 'Back to school month,' the European Haemophilia Consortium (EHC) created a video showing its National Member Organisations (NMOs) summer activities. In this week's EHC Now! Relive the summer magic by taking a look at EHC members' summer camps!

EHC Now! Welcome Thierry Hoppe: EHC’s new Office Administrator

In June, the EHC team grew by one more member when Thierry Hoppe joined as EHC Office Administrator. In this position, Thierry helps the EHC to manage its finances and human resources. For this edition of EHC Now!, we interview Thierry to learn more about him and his impressions on the EHC Workshop on Tenders [...]

EHC Now! Compilation Newsletter January – June 2019

With the summer months firmly upon us, in this week’s EHC Now! we reflect on the work and progress of the EHC, and our NMOs, during the first half of 2019. In our EHC Now! compilation report we have compiled our reports from our various workshops, conferences and Round Tables and also included updates on […]

EHC Now! EHC reports from the 2019 Leadership Conference

EHC reports from the 2019 Leadership Conference in Brussels, June 21-23, 2019. Commentary from EHC President Brian O'Mahony and representatives from the Netherlands, Ireland, Bulgaria, Azerbaijan, Serbia, the UK and the Republic of Georgia.

EHC Now! Update on First Youth Fellowship Project

With the summer months amongst us, it is perhaps a time to rest and rejuvenate for some, but for others it can be a time for new ideas and new learning. Following the success of our recent Women with Bleeding Disorders Conference – we, and indeed our community, experienced first-hand how important all groups in [...]

EHC Now! Pain Management Round Table, June 11, 2019 – Brussels

Jamie O’Hara, UK Haemophilia Society; Hortensia de la Corte Rodriguez, Hospital Universitario La Paz, Madrid; Pier-Luigi Solimeno, University of Milan; Miguel Crato, EHC Steering Committee; Lotte Haverman, Amsterdam UMC; Nathalie Roussel, University of Antwerp; Paul McLaughlin, Royal Free London NHS Foundation Trust Frank and open Q&A about alternative treatments, physical activity, opioids, physiotherapy; comparing various [...]