{"id":6120,"date":"2025-04-17T08:08:34","date_gmt":"2025-04-17T06:08:34","guid":{"rendered":"https:\/\/www.ehc.eu\/non-classifiee\/lehc-celebre-la-journee-mondiale-de-lhemophilie-2025-lhemophilie-femasculine-est-elle\/"},"modified":"2026-04-02T16:31:34","modified_gmt":"2026-04-02T14:31:34","slug":"lehc-celebre-la-journee-mondiale-de-lhemophilie-2025-lhemophilie-femasculine-est-elle","status":"publish","type":"post","link":"https:\/\/www.ehc.eu\/fr\/nouvelles\/lehc-celebre-la-journee-mondiale-de-lhemophilie-2025-lhemophilie-femasculine-est-elle\/","title":{"rendered":"L\u2019EHC c\u00e9l\u00e8bre la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2025 : L\u2019h\u00e9mophilie (fe)masculine est-elle ?"},"content":{"rendered":"<!-- hero -->\t<section   class=\"subpage-hero bg-white\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"relative z-10\">\n\t\t\t\t<div class=\"pt-16 lg:pt-24 pb-24 lg:pb-32\">\n\t\t\t\t\t<div class=\"row justify-between gap-10 lg:gap-0 mt-10 text-center lg:text-left\">\n\t\t\t\t\t\t<div class=\"w-full lg:w-6\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h2\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t\t<p class=\"text-[115%]\">L\u2019EHC c\u00e9l\u00e8bre la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2025 : L\u2019h\u00e9mophilie est-elle un homme ?<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<figure class=\"absolute size-[41.8rem] lg:size-[82.8rem] bottom-[-10%] right-[-10rem] lg:right-[-5%] image-contain opacity-100 skip-lazy\" data-parallax>\n\t\t\t\t\t<img decoding=\"async\" loading=\"eager\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/themes\/cbd\/img\/content-logo-colorfull-2.svg\" alt=\"content-logo-colorfull\">\n\t\t\t\t<\/figure>\n\t\t\t\t\t\t<\/section>\n<!-- overview -->\t<section   class=\"s-overlay-img s-padding bg-red\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"row w-full lg:flex-row justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t\t\t<div class=\"w-full lg:py-10\">\n\t\t\t\t\t<div class=\"bg-white min-h-full py-12 px-10 lg:py-24 lg:pl-24 xl:pl-44 relative radius-20 z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">L\u2019h\u00e9mophilie est souvent per\u00e7ue comme une affection qui ne touche que les hommes, et cette vision d\u00e9pass\u00e9e continue d\u2019affecter les soins, le diagnostic et la compr\u00e9hension de cette affection chez les femmes. Bien que l\u2019h\u00e9mophilie touche principalement les hommes en raison de son h\u00e9r\u00e9dit\u00e9 li\u00e9e \u00e0 l\u2019X S, jusqu\u2019\u00e0 30 % des porteuses f\u00e9minines pr\u00e9sentent des niveaux de facteurs de coagulation r\u00e9duits, et beaucoup d\u2019autres pr\u00e9sentent un risque accru de saignement. Malgr\u00e9 cela, les femmes sont encore trop souvent per\u00e7ues comme des \u00ab porteuses juste \u00bb, une id\u00e9e re\u00e7ue qui peut retarder le diagnostic et limiter l\u2019acc\u00e8s \u00e0 des soins de sant\u00e9 appropri\u00e9s.  <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pour remettre en question ce biais et sensibiliser, le <\/span>EHC<span style=\"font-weight: 400;\"> publie deux nouvelles ressources \u00e0 l\u2019occasion <\/span><b>de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2025<\/b> <span style=\"font-weight: 400;\">:<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\ud83d\udcd8 <\/span><b><i>L\u2019h\u00e9mophilie (fe)est masculine ?<\/i><\/b><span style=\"font-weight: 400;\">, un livret cr\u00e9\u00e9 par l\u2019EHC ax\u00e9 sur les femmes porteuses d\u2019h\u00e9mophilie ainsi que sur les femmes et filles atteintes d\u2019h\u00e9mophilie, explorant leurs r\u00e9alit\u00e9s cliniques, leurs exp\u00e9riences v\u00e9cues et les lacunes syst\u00e9miques auxquelles elles sont confront\u00e9es. <\/span><strong><i>Si vous \u00eates une organisation membre nationale de l\u2019EHC et souhaitez traduire cette publication dans votre langue nationale, veuillez contacter l\u2019EHC \u00e0 <\/i><a href=\"mailto:education@ehc.eu\" target=\"_blank\" rel=\"noopener\"><i>education@ehc.eu<\/i><\/a><\/strong><i><strong>.<\/strong> <\/i> <\/p>\n<p><a href=\"https:\/\/www.ehc.eu\/wp-content\/uploads\/2025\/06\/EHC-Booklet-on-Women-with-Haemophilia-and-Female-Carriers.pdf\" target=\"_blank\" rel=\"noopener\"><strong>T\u00e9l\u00e9chargez le livret de l\u2019EHC ICI.<\/strong><\/a><\/p>\n<p><span style=\"font-weight: 400;\">\ud83c\udfa7<\/span><b>Un nouvel \u00e9pisode de podcast anim\u00e9 par le<\/b> <a href=\"https:\/\/www.eu-patient.eu\/\" target=\"_blank\" rel=\"noopener\"><b>Forum europ\u00e9en des patients<\/b><\/a><span style=\"font-weight: 400;\">, avec la participation <\/span><b>de la PDG d\u2019EHC, Olivia Romero Lux<\/b><span style=\"font-weight: 400;\">, pour souligner davantage l\u2019importance de reconna\u00eetre et de soutenir les femmes porteuses d\u2019h\u00e9mophilie ainsi que les femmes et filles atteintes d\u2019h\u00e9mophilie. <\/span> <\/p>\n<p><a href=\"https:\/\/open.spotify.com\/episode\/0QSD4djA9ZBH2cQ74HH0RC?si=ce221ecc85b240a1\" target=\"_blank\" rel=\"noopener\"><strong>\u00c9coutez le podcast EPF ICI.<\/strong><\/a><\/p>\n<p><span style=\"font-weight: 400;\">\u00c0 l\u2019occasion de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, nous vous encourageons \u00e0 lire, \u00e9couter et nous aider \u00e0 sensibiliser. Parce que l\u2019h\u00e9mophilie ne fait pas de discrimination \u2014 et elle ne devrait pas non plus s\u2019en soucier. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">#WHD2025 #WorldHemophiliaDay #WeBleedToo #HaemophiliaAwareness  <\/span><\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/section>\n","protected":false},"excerpt":{"rendered":"<p>L\u2019h\u00e9mophilie est souvent per\u00e7ue comme une affection qui ne touche que les hommes, et cette vision d\u00e9pass\u00e9e continue d\u2019affecter les soins, le diagnostic et la compr\u00e9hension de cette affection chez les femmes. Pour remettre en question ce biais et sensibiliser, l\u2019EHC publie deux nouvelles ressources \u00e0 l\u2019occasion de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2025. <\/p>\n","protected":false},"author":4,"featured_media":4232,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[64,108],"tags":[135,183,77],"class_list":["post-6120","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nouvelles","category-sensibilisation","tag-campagne","tag-journee-mondiale-de-lhemophilie","tag-wbd"],"acf":[],"jetpack_featured_media_url":"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Blog-banner-1.jpg?strip=all&sharp=1","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts\/6120","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/comments?post=6120"}],"version-history":[{"count":1,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts\/6120\/revisions"}],"predecessor-version":[{"id":6122,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts\/6120\/revisions\/6122"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/media\/4232"}],"wp:attachment":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/media?parent=6120"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/categories?post=6120"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/tags?post=6120"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}