{"id":6190,"date":"2026-02-01T09:53:55","date_gmt":"2026-02-01T08:53:55","guid":{"rendered":"https:\/\/www.ehc.eu\/non-classifiee\/journee-europeenne-de-sensibilisation-a-la-maladie-de-von-willebrand-2026-lehc-appelle-a-une-action-politique\/"},"modified":"2026-04-02T16:32:08","modified_gmt":"2026-04-02T14:32:08","slug":"journee-europeenne-de-sensibilisation-a-la-maladie-de-von-willebrand-2026-lehc-appelle-a-une-action-politique","status":"publish","type":"post","link":"https:\/\/www.ehc.eu\/fr\/nouvelles\/journee-europeenne-de-sensibilisation-a-la-maladie-de-von-willebrand-2026-lehc-appelle-a-une-action-politique\/","title":{"rendered":"Journ\u00e9e europ\u00e9enne de sensibilisation \u00e0 la maladie de von Willebrand 2026 : l\u2019EHC appelle \u00e0 une action politique"},"content":{"rendered":"<!-- hero -->\t<section   class=\"subpage-hero bg-white\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"relative z-10\">\n\t\t\t\t<div class=\"pt-16 lg:pt-24 pb-24 lg:pb-32\">\n\t\t\t\t\t<div class=\"row justify-between gap-10 lg:gap-0 mt-10 text-center lg:text-left\">\n\t\t\t\t\t\t<div class=\"w-full lg:w-6\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h2\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t\t<p class=\"text-[115%]\">Journ\u00e9e europ\u00e9enne de sensibilisation \u00e0 la maladie de von Willebrand 2026 : l\u2019EHC appelle \u00e0 une action politique<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<figure class=\"absolute size-[41.8rem] lg:size-[82.8rem] bottom-[-10%] right-[-10rem] lg:right-[-5%] image-contain opacity-100 skip-lazy\" data-parallax>\n\t\t\t\t\t<img decoding=\"async\" loading=\"eager\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/themes\/cbd\/img\/content-logo-colorfull-2.svg\" alt=\"content-logo-colorfull\">\n\t\t\t\t<\/figure>\n\t\t\t\t\t\t<\/section>\n<!-- overview -->\t<section   class=\"s-overlay-img s-padding bg-red\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"row w-full lg:flex-row justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t\t\t<div class=\"w-full lg:py-10\">\n\t\t\t\t\t<div class=\"bg-white min-h-full py-12 px-10 lg:py-24 lg:pl-24 xl:pl-44 relative radius-20 z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<h4><b>Garantir l\u2019acc\u00e8s aux m\u00e9dicaments essentiels reste une priorit\u00e9<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">\u00c0 <strong>l\u2019occasion de la Journ\u00e9e europ\u00e9enne de sensibilisation \u00e0 la maladie de von Willebrand (VWD<\/strong>), l\u2019EHC c\u00e9l\u00e8bre l\u2019occasion en renouvelant son appel \u00e0 l\u2019inclusion du facteur von Willebrand sur la liste de l\u2019Union des m\u00e9dicaments critiques.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">La Journ\u00e9e de sensibilisation de cette ann\u00e9e rappelle de fa\u00e7on importante que, bien que des progr\u00e8s aient \u00e9t\u00e9 r\u00e9alis\u00e9s pour sensibiliser \u00e0 la VWD, d\u2019importantes lacunes en politiques subsistent. <strong>L\u2019absence persistante du facteur von Willebrand de la liste des m\u00e9dicaments critiques de l\u2019Union europ\u00e9enne<\/strong> pose des risques persistants pour la continuit\u00e9 des soins et la s\u00e9curit\u00e9 des patients \u00e0 travers l\u2019Europe. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Alors que nous mettons en lumi\u00e8re les exp\u00e9riences des personnes vivant aujourd\u2019hui avec la VWD, l\u2019EHC r\u00e9affirme son engagement \u00e0 d\u00e9fendre les changements de politique n\u00e9cessaires pour prot\u00e9ger les patients et garantir un acc\u00e8s fiable aux traitements essentiels.<\/span><\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.ehc.eu\/wp-content\/uploads\/2026\/01\/VWD-Awareness-Day-2026-EHC-Statement.pdf\" target=\"_blank\" class=\"btn with-icon\">\n\t\t\t\t\t\t\t\t\t<span>Read the full statement here<\/span>\n\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/section>\n<!-- overview -->\t<section   class=\"s-overlay-img s-padding-top overflow-visible\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"row w-full lg:w-10\/12 mx-auto lg:flex-row justify-between text-center lg:text-left relative z-10\">\n\t\t\t\t\t\t\t\t<div class=\"w-full relative z-0\">\n\t\t\t\t\t<div class=\"flex flex-col justify-center items-center lg:items-start bg-white py-12 px-10 lg:py-24 lg:px-24 lg:pl-60 min-h-full relative radius-20 drop-s z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<h4><b>Soutenir la communaut\u00e9 VWD<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">Le <\/span><b>comit\u00e9 VWD de l\u2019EHC<\/b><span style=\"font-weight: 400;\"> a d\u00e9velopp\u00e9 des ressources pour autonomiser les patients et leurs familles :<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">D\u00e9couvrez ici le<strong><a href=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2026\/01\/EHC-VWD-NMO-Handbook-Final.pdf\" target=\"_blank\" rel=\"noopener\"> Guide complet EHC sur les VWD.<\/a><\/strong><\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">D\u00e9couvrez le <strong><a href=\"https:\/\/community.ehc.eu\/news\/new-ehc-childrens-book-now-available-to-help-explain-von-willebrand-disease\/\" target=\"_blank\" rel=\"noopener\">livre pour enfants EHC sur VWD ici.<\/a><\/strong><\/span><\/li>\n<\/ul>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<a href=\"https:\/\/community.ehc.eu\/focus-area\/von-willebrand-disease-vwd\/\u00a0\" target=\"_blank\" class=\"btn btn-blue with-icon\">\n\t\t\t\t\t\t\t\t\t<span>Learn more on our Community website<\/span>\n\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t<figure class=\"absolute size-[45rem] lg:size-[82.8rem] bottom-[-30%] right-[-5%] image-contain opacity-50 pointer-events-none\" data-parallax>\n\t\t\t<img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/themes\/cbd\/img\/content-logo-colorfull-2.svg\" alt=\"content-logo-colorfull\">\n\t\t<\/figure>\n\t<\/section>\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<div class=\"jetpack-video-wrapper\"><iframe loading=\"lazy\" title=\"Von Willebrand Disease Awareness Day 2026: Making the Invisible Visible\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/hWPzxpZWx0k?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<\/div><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>L\u2019EHC c\u00e9l\u00e8bre cette occasion en renouvelant son appel \u00e0 l\u2019inclusion du facteur von Willebrand sur la liste des m\u00e9dicaments critiques de l\u2019Union europ\u00e9enne.<\/p>\n","protected":false},"author":4,"featured_media":5419,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[64,108],"tags":[135,110,127,208],"class_list":["post-6190","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nouvelles","category-sensibilisation","tag-campagne","tag-campagne-de-sensibilisation","tag-document-de-position","tag-vwd"],"acf":[],"jetpack_featured_media_url":"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/01\/VWD-Day-2026-Blog-Banner.jpg?strip=all&sharp=1","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts\/6190","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/comments?post=6190"}],"version-history":[{"count":2,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts\/6190\/revisions"}],"predecessor-version":[{"id":6195,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/posts\/6190\/revisions\/6195"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/media\/5419"}],"wp:attachment":[{"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/media?parent=6190"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/categories?post=6190"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ehc.eu\/fr\/wp-json\/wp\/v2\/tags?post=6190"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}