{"id":3587,"date":"2024-10-08T15:25:00","date_gmt":"2024-10-08T13:25:00","guid":{"rendered":"https:\/\/www.ehc.eu\/upravljanje\/"},"modified":"2025-12-23T10:02:49","modified_gmt":"2025-12-23T09:02:49","slug":"upravljanje","status":"publish","type":"page","link":"https:\/\/www.ehc.eu\/hr\/upravljanje\/","title":{"rendered":"Upravljanje"},"content":{"rendered":"\t
\n\t\t
\n\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Na\u0161e upravljanje<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t

Europski konzorcij za hemofiliju (EHC) me\u0111unarodna je neprofitna organizacija registrirana u Belgiji (br. 887.106.966). EHC statuti dostupni su na engleskom i francuskom jeziku. <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t

\n
\n \t\t
\n\t

Statut EHC-a<\/p>\n\t <\/div>\n\t \t \t

\n\t \t\t \t\t
\n\t \t\t\t\n\t \t\t\t\tDownload (EN)<\/span>\n\t \t\t\t<\/a>\n\t \t\t<\/div>\n\t \t\t \t\t
\n\t \t\t\t\n\t \t\t\t\tDownload (FR)<\/span>\n\t \t\t\t<\/a>\n\t \t\t<\/div>\n\t \t\t <\/div>\n
\n \"content-logo-colorfull\"\n <\/figure>\n <\/div>\n <\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/section>\n\t
\n\t\t
\n\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t

EHC upravlja\u010dka tijela<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t

EHC-om upravlja Op\u0107a skup\u0161tina<\/strong> sastavljena od predstavnika svih nacionalnih organizacija \u010dlanica (NMO)<\/strong> . Izme\u0111u Op\u0107ih skup\u0161tina, aktivnosti EHC-a nadgleda Upravni odbor koji bira Op\u0107a skup\u0161tina, a sastoji se od predsjednika, potpredsjednika, blagajnika i \u010dlanova Upravnog odbora. <\/span><\/p>\n

Upravni odbor (UO)<\/strong> bira Glavna skup\u0161tina na mandat od \u010detiri godine. \u010clanovi SC-a ispunjavaju svoj mandat isklju\u010divo kao nepla\u0107eni volonteri u najboljem interesu zajednice pacijenata koju predstavljaju i kojoj slu\u017ee. Obi\u010dno ne dobivaju nikakvu financijsku dobit ili naknadu za svoje vrijeme i godi\u0161nje izvje\u0161\u0107uju o bilo kakvim privatnim interesima koje bi mogli imati. <\/span><\/p>\n

Rad EHC-a ne bi bio mogu\u0107 bez podr\u0161ke desetaka volontera<\/strong> iz cijele Europe koji velikodu\u0161no nude svoje vrijeme i energiju kako bi omogu\u0107ili aktivnosti EHC-a. \u0160irok raspon tematskih odbora i radnih skupina vodi i podr\u017eava rad EHC SC-a. <\/span><\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/section>\n

\n
\n
\n
\n
\n
\n

Upravni odbor EHC-a sastoji se od:<\/p>\n <\/div>\n <\/div>\n <\/div>\n

\n
\n
\n
<\/div>\n \"\" <\/figure>\n
\n
\n
\n
\n \n \n <\/use>\n <\/svg>\n <\/span>\n <\/div>\n <\/div>\n <\/div>\n
\n
\n

William McKeown<\/p>\n <\/div>\n

\n

Ujedinjeno Kraljevstvo<\/p>\n <\/div>\n

\n

\u010clan Upravnog odbora<\/p>\n <\/div>\n <\/div>\n <\/div>\n

\n
\n
\n
\n
\n \"\" <\/figure>\n <\/div>\n <\/div>\n
\n
\n

William McKeown<\/p>\n <\/div>\n

\n
\n <\/svg>\n Ujedinjeno Kraljevstvo <\/div>\n
\n <\/svg>\n \u010clan Upravnog odbora <\/div>\n
\n <\/svg>\n william.mckeown@ehc.eu<\/a>\n <\/div>\n <\/div>\n
\n \n

William McKeown je pacijent s te\u0161kom hemofilijom A iz Sjeverne Irske. William je potpredsjednik udruge Haemophilia NI, ambasador pacijenata za Udru\u017eenje za hemofiliju Ujedinjenog Kraljevstva i biv\u0161i \u010dlan Odbora mladih EHC-a. <\/p>\n\n

William je lije\u010dnik specijaliziran za konzultanta gerijatra i lije\u010dnika za mo\u017edani udar u bolnici Antrim Area u Sjevernoj Irskoj, te ima magisterij iz medicinskog obrazovanja. Posebno je strastven prema promicanju uspje\u0161nog starenja za osobe s poreme\u0107ajima krvarenja, o \u010demu je ve\u0107 ranije prezentirao na EHC-u i WFH-u. <\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n
\n
\n
<\/div>\n \"\" <\/figure>\n
\n
\n
\n
\n \n \n <\/use>\n <\/svg>\n <\/span>\n <\/div>\n <\/div>\n <\/div>\n
\n
\n

Olivia Romero Lux<\/p>\n <\/div>\n

\n

Glavni izvr\u0161ni direktor (CEO) i \u010dlan Upravnog odbora po slu\u017ebenoj du\u017enosti<\/p>\n <\/div>\n <\/div>\n <\/div>\n

\n
\n
\n
\n
\n \"\" <\/figure>\n <\/div>\n <\/div>\n
\n
\n

Olivia Romero Lux<\/p>\n <\/div>\n

\n
\n <\/svg>\n Glavni izvr\u0161ni direktor (CEO) i \u010dlan Upravnog odbora po slu\u017ebenoj du\u017enosti <\/div>\n
\n <\/svg>\n oliviaromerolux@ehc.eu<\/a>\n <\/div>\n <\/div>\n
\n \n

Olivia se pridru\u017eila EHC timu u travnju 2024. nakon \u0161to je dugi niz godina volontirala i obna\u0161ala razli\u010dite uloge: \u010dlanica Upravnog odbora i privremena predsjednica.<\/p>\n\n

Usredoto\u010dena na pristup jednakom tretmanu za sve, obrazovanje mladih i ja\u010danje kapaciteta NMO-a, Olivia je bila izabrana u Upravni odbor EHC-a od 2013. do 2020. godine i od osnutka je savjetnica za mlade EHC-a. Ponovno je kooptirana da se pridru\u017ei Upravnom odboru EHC-a u sije\u010dnju 2023. U srpnju 2023. Upravni odbor EHC-a jednoglasno je imenovao Oliviju Romero Lux da preuzme ulogu predsjednice u privremenoj skrbnoj ulozi do kraja mandata u listopadu 2023. nakon ostavke Declana Noonea. <\/p>\n\n

S dokazanom predano\u0161\u0107u i iskustvom, Olivia donosi bogatstvo stru\u010dnosti i vodstva na\u0161oj organizaciji. Njezina predanost trenutnoj viziji i strate\u0161kim ciljevima, kao i inovativan i uravnote\u017een pristup izazovima, vodit \u0107e EHC kroz na\u0161u sljede\u0107u fazu rasta i razvoja. <\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n<\/section>\n

\n\t
\n\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t

Odbori i radne skupine EHC-a<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t<\/use>\n\t\t\t\t\t\t\t\t\t<\/svg>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t<\/use>\n\t\t\t\t\t\t\t\t\t<\/svg>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t

Medicinska savjetodavna skupina (MAG)<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tLearn more<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\"content-logo-colorfull\"\n\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t

Radna skupina za pregled novog lije\u010denja (NTR).<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tLearn more<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\"content-logo-colorfull\"\n\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t

Odbor Europske mre\u017ee za rijetke i inhibitore (ERIN).<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tLearn more<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\"content-logo-colorfull\"\n\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t

Radna skupina za mentalno zdravlje<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tLearn more<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\"content-logo-colorfull\"\n\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t

Povjerenstvo za von Willebrandovu bolest (VWD).<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tLearn more<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\"content-logo-colorfull\"\n\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t

Odbor za \u017eene i poreme\u0107aje krvarenja (WBD).<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tLearn more<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\"content-logo-colorfull\"\n\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t

Odbor mladih<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\tLearn more<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\"content-logo-colorfull\"\n\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t<\/div>\n<\/section>
\n\t
\n\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t\t

EHC financijske smjernice<\/p>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t

Svrha financijskih smjernica je osigurati neometano funkcioniranje EHC-a. Ove smjernice treba promatrati kao op\u0107u politiku koju treba slijediti za sve financijske postupke unutar organizacije. <\/p>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\n\t\t\t\t\t\tRead more<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t<\/div>\n\t
\n\t\t\"content-logo-colorfull\"\n\t<\/figure>\n<\/section>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-3587","page","type-page","status-publish","hentry"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages\/3587","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/comments?post=3587"}],"version-history":[{"count":2,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages\/3587\/revisions"}],"predecessor-version":[{"id":5311,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages\/3587\/revisions\/5311"}],"wp:attachment":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/media?parent=3587"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}