{"id":5772,"date":"2024-10-08T11:30:18","date_gmt":"2024-10-08T09:30:18","guid":{"rendered":"https:\/\/www.ehc.eu\/zagovaranje\/svjetski-dan-hemofilije\/"},"modified":"2026-04-08T17:27:04","modified_gmt":"2026-04-08T15:27:04","slug":"svjetski-dan-hemofilije","status":"publish","type":"page","link":"https:\/\/www.ehc.eu\/hr\/zagovaranje\/svjetski-dan-hemofilije\/","title":{"rendered":"Svjetski dan hemofilije"},"content":{"rendered":"<!-- hero -->\t<section   class=\"subpage-hero bg-red text-white\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"relative z-10\">\n\t\t\t\t<div class=\"pt-16 lg:pt-24 pb-24 lg:pb-32\">\n\t\t\t\t\t<div class=\"row justify-between gap-10 lg:gap-0 mt-10 text-center lg:text-left\">\n\t\t\t\t\t\t<div class=\"w-full lg:w-7\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h3\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t\t<p class=\"text-[115%]\">Svjetski dan hemofilije  <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-14 lg:mt-20\" data-scroll data-fade-up data-delay-02>\n\t\t\t\t\t\t\t\t\t<p>Svake godine, 17. travnja, EHC se pridru\u017euje globalnoj zajednici osoba s poreme\u0107ajima zgru\u0161avanja kako bi obilje\u017eio Svjetski dan hemofilije.<\/p>\n<p>Ovaj dan obilje\u017eava ro\u0111endan Franka Schnabela, osniva\u010da Svjetske federacije za hemofiliju (WFH), i slu\u017ei kao platforma za podizanje svijesti o klju\u010dnim aspektima hemofilije i kongenitalnih poreme\u0107aja krvarenja na globalnoj razini.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<figure class=\"absolute size-[82.8rem] bottom-[-30%] right-[-5%] image-contain opacity-20 skip-lazy\" data-parallax>\n\t                <img decoding=\"async\" loading=\"eager\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/themes\/cbd\/img\/content-logo-colorfull.svg\" alt=\"content-logo-colorfull\">\n\t            <\/figure>\n\t\t\t\t\t\t<\/section>\n<!-- content-image --><section id=\"2026\"  class=\"s-simple !m-0 py-20\">\n\t<div class=\"container\">\n\t\t\t\t<div class=\"row w-full lg:flex-row-reverse justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t\t<div class=\"w-full lg:w-5\/12\" data-scroll data-fade-up>\n\t\t\t\t\t<div class=\"block w-full h-[38rem] lg:h-[25vmax] min-h-full relative overflow-hidden radius-20\">\n\t\t\t\t\t\t<figure class=\"bg radius-20\" data-img-animation data-parallax>\n\t\t\t\t\t\t\t<img width=\"1024\" height=\"1024\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner-1024x1024.jpg?strip=all&amp;sharp=1\" class=\"attachment-large size-large\" alt=\"\" decoding=\"async\" loading=\"lazy\" srcset=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner-1024x1024.jpg?strip=all&amp;sharp=1 1024w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner-300x300.jpg?strip=all&amp;sharp=1 300w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner-150x150.jpg?strip=all&amp;sharp=1 150w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner-768x768.jpg?strip=all&amp;sharp=1 768w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner.jpg?strip=all&amp;sharp=1 1080w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner.jpg?strip=all&amp;sharp=1&amp;w=216 216w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner.jpg?strip=all&amp;sharp=1&amp;w=432 432w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner.jpg?strip=all&amp;sharp=1&amp;w=648 648w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/02\/WHD-2026-Survey-Letter-Blog-Banner.jpg?strip=all&amp;sharp=1&amp;w=864 864w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"w-full lg:w-6\/12 lg:py-16 lg:self-center\">\n\t\t\t\t\t\t\t\t\t<div class=\"title h4 w-full\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p>Svjetski dan hemofilije 2026.<\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-14\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p>Ovaj <strong>Svjetski dan hemofilije<\/strong> stvaramo vremensku kapsulu s <strong>Pismom budu\u0107nosti <\/strong>koje \u0107e biti otvoreno 2039. godine kada EHC slavi 50. obljetnicu. \u017delimo \u010duti va\u0161e mi\u0161ljenje. <\/p>\n<p><strong>Pismo \u0107e zabilje\u017eiti gdje se kao zajednica nalazimo u 2026. i na\u0161e nade za sljede\u0107ih 15 godina.<\/strong>  Va\u0161 \u0107e glas postati dio ovog povijesnog dokumenta \u2014 most izme\u0111u danas i sutra\u0161njice.<\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t<a href=\"https:\/\/www.ehc.eu\/awareness\/add-your-voice-to-the-ehc-time-capsule-2026-2039\/\" target=\"_blank\" class=\"btn btn-blue with-icon\">\n\t\t\t\t\t\t\t<span>Share your voice here<\/span>\n\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t \t<\/div>\n<\/section><!-- content-image --><section id=\"2025\"  class=\"s-simple !m-0 py-20\">\n\t<div class=\"container\">\n\t\t\t\t\t<div class=\"w-full lg:w-8\/12 block mx-auto h-[1px] bg-red mb-40\"><\/div>\n\t\t\t\t<div class=\"row w-full lg:flex-row justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t\t<div class=\"w-full lg:w-5\/12\" data-scroll data-fade-up>\n\t\t\t\t\t<div class=\"block w-full h-[38rem] lg:h-[25vmax] min-h-full relative overflow-hidden radius-20\">\n\t\t\t\t\t\t<figure class=\"bg radius-20\" data-img-animation data-parallax>\n\t\t\t\t\t\t\t<img width=\"940\" height=\"788\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post.png?strip=all&amp;sharp=1\" class=\"attachment-large size-large\" alt=\"\" decoding=\"async\" loading=\"lazy\" srcset=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post.png?strip=all&amp;sharp=1 940w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post-300x251.png?strip=all&amp;sharp=1 300w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post-768x644.png?strip=all&amp;sharp=1 768w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post.png?strip=all&amp;sharp=1&amp;w=188 188w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post.png?strip=all&amp;sharp=1&amp;w=376 376w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post.png?strip=all&amp;sharp=1&amp;w=564 564w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2025\/04\/WHD-2025-Fb-Post.png?strip=all&amp;sharp=1&amp;w=450 450w\" sizes=\"auto, (max-width: 940px) 100vw, 940px\" \/>\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"w-full lg:w-6\/12 lg:py-16 lg:self-center\">\n\t\t\t\t\t\t\t\t\t<div class=\"title h4 w-full\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p>Svjetski dan hemofilije 2025.<\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-14\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p><strong>Je li hemofilija (fe)mu\u0161ka?  <\/strong><\/p>\n<p>\u017dene i djevojke s hemofilijom te nositeljice hemofilije \u010desto se suo\u010davaju sa zna\u010dajnim zdravstvenim preprekama, uklju\u010duju\u0107i nedostatak prepoznavanja, odgo\u0111ene dijagnoze i ograni\u010den pristup skrbi. Iako se tradicionalno smatraju &#8220;samo nositeljima&#8221;, \u017eene koje naslijede gene hemofilije \u010desto do\u017eivljavaju zna\u010dajno krvarenje i niske razine faktora. Me\u0111utim, krvarenje kod takvih \u017eena \u010desto se zanemaruje, ne korelira uvijek s razinama faktora i obi\u010dno se manifestira druga\u010dije nego kod mu\u0161karaca, najvi\u0161e kroz obilno menstrualno krvarenje. Simptomi mogu uklju\u010divati i emocionalni stres, \u0161to mo\u017ee utjecati na kvalitetu njihovog \u017eivota.   <\/p>\n<p>Iako nedavne promjene sada omogu\u0107uju dijagnozu hemofilije kod \u017eena s niskim razinama faktora i razlikuju simptomatske i asimptomatske nositelje gena hemofilije, podizanje svijesti, pobolj\u0161anje dijagnoze, osiguravanje to\u010dne klasifikacije i pro\u0161irenje pristupa novim tretmanima ostaju klju\u010dni.<\/p>\n<p>Kako bi podigao svijest o \u017eenama s hemofilijom i nositeljicama, EHC je na <strong>Svjetski dan hemofilije 2025<\/strong>. objavio dva nova resursa:<\/p>\n<p>\ud83d\udcd8 <a href=\"https:\/\/www.ehc.eu\/wp-content\/uploads\/2025\/06\/EHC-Booklet-on-Women-with-Haemophilia-and-Female-Carriers.pdf\" target=\"_blank\" rel=\"noopener\"><em><strong>Is haemophilia (fe)male?<\/strong><\/em><\/a>, bro\u0161ura koju je izradio EHC, a fokusira se na \u017eene nositeljice hemofilije te \u017eene i djevojke s hemofilijom, istra\u017euju\u0107i njihove klini\u010dke stvarnosti, \u017eivotna iskustva i sistemske praznine s kojima se suo\u010davaju. Resurs je preveden na razli\u010dite jezike. <\/p>\n<p>\ud83c\udfa7 <strong><a href=\"https:\/\/open.spotify.com\/episode\/0QSD4djA9ZBH2cQ74HH0RC?si=37999d036cde4ce7\" target=\"_blank\" rel=\"noopener\">Nova epizoda podcasta<\/a> koju vodi Europski forum pacijenata, s izvr\u0161nom direktoricom EHC-a Olivijom Romero Lux<\/strong>, dodatno isti\u010de va\u017enost prepoznavanja i podr\u0161ke ovoj \u010desto zanemarenoj skupini.<\/p>\n<p data-renderer-start-pos=\"141\"><em><strong>Zahvaljujemo se na\u0161im sponzorima<\/strong><\/em><\/p>\n<p data-renderer-start-pos=\"162\"><em>EHC \u017eeli zahvaliti sljede\u0107im sponzorima kampanje za Svjetski dan hemofilije 2025: CSL Behring i LFB.<\/em><\/p>\n<p><span style=\"font-weight: 400;\"> <\/span><\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t<a href=\"https:\/\/academy.ehc.eu\/library\/#WHDbooklet2025\" target=\"_blank\" class=\"btn btn-blue with-icon\">\n\t\t\t\t\t\t\t<span>Discover the booklet translations<\/span>\n\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t \t<\/div>\n<\/section><!-- content-image --><section id=\"2024\"  class=\"s-simple !m-0 s-padding-top\">\n\t<div class=\"container\">\n\t\t\t\t\t<div class=\"w-full lg:w-8\/12 block mx-auto h-[1px] bg-red mb-40\"><\/div>\n\t\t\t\t<div class=\"row w-full lg:flex-row-reverse justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t<div class=\"w-full lg:py-16 lg:self-center\">\n\t\t\t\t\t\t\t\t\t<div class=\"title h4 w-full\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p>Svjetski dan hemofilije 2024.<\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-14\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p style=\"text-align: left;\"><span style=\"font-weight: 400;\">Svake godine, 17. travnja prilika je za podizanje svijesti o potrebama onih koji su pogo\u0111eni rijetkim poreme\u0107ajima krvarenja. U 2024. godini EHC se fokusira na obrazovanje:   <\/span><i><span style=\"font-weight: 400;\">Pove\u0107avamo znanje kako bismo osna\u017eili zajednicu osoba s poreme\u0107ajima krvarenja!<\/span><\/i><span style=\"font-weight: 400;\"><\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-weight: 400;\">Slu\u017eenje zajednici oduvijek je bilo u sredi\u0161tu rada EHC-a, kao i edukacija pacijenata. Cilj nam je osigurati pristup obrazovanju za pacijente i organizacije pacijenata kroz raznolike obrazovne materijale i programe.   <\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-weight: 400;\">Kako bi iskustvo bilo inkluzivnije i jednostavnije za kori\u0161tenje, EHC je stvorio EHC Akademiju, sveobuhvatnu obrazovnu platformu za svoje \u010dlanove.<\/span><\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t             <div class=\"w-full lg:w-4\/5 mt-14 radius-20 overflow-hidden\" data-lenis-prevent>\n                <iframe loading=\"lazy\" data-lenis-prevent width=\"100%\" height=\"100%\" style=\"aspect-ratio: 16 \/ 9;\" src=\"https:\/\/www.youtube.com\/embed\/jHerYoqkzC0?si=mbu9vnJYBxtxmvOO\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n            <\/div>\n        \t<\/div>\n<\/section><!-- content-image --><section id=\"2024\"  class=\"s-simple !m-0 s-padding-bottom\">\n\t<div class=\"container\">\n\t\t\t\t<div class=\"row w-full lg:flex-row-reverse justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t<div class=\"w-full lg:py-16 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-14\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p><strong>EHC Akademija: Unapre\u0111enje edukacije pacijenata iz svih kutova<\/strong><\/p>\n<p><span style=\"font-weight: 400;\">U virtualnim dvoranama Akademije prona\u0107i \u0107ete bogatstvo znanja o poreme\u0107ajima zgru\u0161avanja, od temeljnih koncepata do detaljnih informacija o mogu\u0107nostima lije\u010denja.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Istra\u017eite na\u0161 EHCucate projekt, gdje predstavljamo i etablirane i najsuvremenije tretmane te saznajemo o trenutno dostupnim opcijama lije\u010denja (organiziranim po kohortama) kao i nadolaze\u0107im terapijama (predstavljenim u na\u0161em EHC NTR \u2013 Pregled novih terapija). U na\u0161oj kontinuiranoj predanosti osna\u017eivanju uklju\u010dili smo na\u0161 online te\u010daj zdravstvene ekonomije, pru\u017eaju\u0107i neprocjenjive alate za zagovaranje na nacionalnoj razini. Nadalje, zaronite u zakonodavni okvir EU-a kako biste razumjeli okvir koji oblikuje na\u0161e zagovara\u010dke napore.  <\/span><\/p>\n<p><span style=\"font-weight: 400;\">EHC Akademija nije samo o informacijama\u2014ona je dinami\u010dno sredi\u0161te resursa. Od anketa do na\u010dela skrbi, priru\u010dnika do smjernica, na\u0161a platforma je baza podataka materijala usmjerenih na pacijenta. Kako se krajolik lije\u010denja razvija, a alati za zagovaranje razvijaju zajedno s njim, EHC Akademija \u0107e se razvijati u savr\u0161enom ritmu. Kroz jedinstveno, visokokvalitetno znanje i prakti\u010dne alate, cilj nam je unaprijediti zagovara\u010dke vje\u0161tine i otvoriti put prema boljoj kvaliteti \u017eivota pacijenata diljem Europe.     <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Na\u0161a predanost misiji ostaje nepokolebljiva, sa\u017eeta u na\u0161em motu: Osna\u017eivanje zajednice oboljelima od poreme\u0107aja krvarenja!<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pozivamo sve nacionalne \u010dlanice EHC-a da nam po\u0161alju svoje materijale na svojim jezicima kako bi ova platforma bila zaista vrijedna za na\u0161u veliku multinacionalnu obitelj. Molimo kontaktirajte nas na   <\/span><a href=\"mailto:education@ehc.eu\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">education@ehc.eu<\/span><\/a><span style=\"font-weight: 400;\">  kako biste saznali kako mo\u017eete doprinijeti EHC Akademiji. Pridru\u017eite nam se dok zajedno napravimo odlu\u010dan korak naprijed. <\/span><\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t<a href=\"https:\/\/academy.ehc.eu\/\" target=\"_blank\" class=\"btn btn-blue with-icon\">\n\t\t\t\t\t\t\t<span>Discover the EHC Academy<\/span>\n\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t \t<\/div>\n<\/section><!-- content-image --><section   class=\"s-simple !m-0 py-20\">\n\t<div class=\"container\">\n\t\t\t\t\t<div class=\"w-full lg:w-8\/12 block mx-auto h-[1px] bg-red mb-40\"><\/div>\n\t\t\t\t<div class=\"row w-full lg:flex-row-reverse justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t\t<div class=\"w-full lg:w-5\/12\" data-scroll data-fade-up>\n\t\t\t\t\t<div class=\"block w-full h-[38rem] lg:h-[30vmax] min-h-full relative overflow-hidden radius-20\">\n\t\t\t\t\t\t<figure class=\"bg radius-20\" data-img-animation data-parallax>\n\t\t\t\t\t\t\t<img width=\"940\" height=\"788\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1.png?strip=all&amp;sharp=1\" class=\"attachment-large size-large\" alt=\"\" decoding=\"async\" loading=\"lazy\" srcset=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1.png?strip=all&amp;sharp=1 940w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1-300x251.png?strip=all&amp;sharp=1 300w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1-768x644.png?strip=all&amp;sharp=1 768w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1.png?strip=all&amp;sharp=1&amp;w=188 188w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1.png?strip=all&amp;sharp=1&amp;w=376 376w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1.png?strip=all&amp;sharp=1&amp;w=564 564w, https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2024\/11\/WHW-2023-Fb-Post-1-1.png?strip=all&amp;sharp=1&amp;w=450 450w\" sizes=\"auto, (max-width: 940px) 100vw, 940px\" \/>\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"w-full lg:w-6\/12 lg:py-16 lg:self-center\">\n\t\t\t\t\t\t\t\t\t<div class=\"title h4 w-full\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p>Svjetski dan hemofilije 2023.<\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-14\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Godine 2023. EHC je organizirao tjednu kampanju podizanja svijesti usmjerenu <\/span><i><span style=\"font-weight: 400;\">na Put prema zdravom starenju<\/span><\/i><span style=\"font-weight: 400;\">, temu koja je jednako va\u017ena za sve skupine u zajednici osoba s poreme\u0107ajima zgru\u0161avanja. Tijekom tjedna od ponedjeljka 17. do petka 21. travnja, EHC je obra\u0111ivao razli\u010dite aspekte ove teme. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">U ponedjeljak, 17. travnja, na WHD-u, EHC je na svojim glavnim komunikacijskim kanalima objavio govor predsjednika EHC-a Declana Noonea i detaljan infografik koji prikazuje rezultate ankete o procjeni potreba EHC-a za pacijente s poreme\u0107ajem zgru\u0161avanja u dobi od 50+.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">U utorak, 18. travnja, EHC se usredoto\u010dio na va\u017enost pristupa multidisciplinarnoj skrbi jer je o\u010dekivani \u017eivotni vijek osoba s poreme\u0107ajima zgru\u0161avanja krvi dosegao razinu op\u0107e populacije. Kako bi postavili scenu, EHC je objavio video svog webinara   <\/span><i><span style=\"font-weight: 400;\">Na putu prema zdravom starenju: va\u017enost multidisciplinarne skrbi i koordinacije<\/span><\/i><span style=\"font-weight: 400;\">. Govornici su bili dr. Kate Khair i prof. Cedric Hermans koji su raspravljali o izazovima i razmatranjima multidisciplinarne skrbi iz perspektive sestrinstva i hematologije. EHC je tako\u0111er odabrao nekoliko relevantnih materijala iz svoje serije   <\/span><i><span style=\"font-weight: 400;\">Sretan polsatni razgovor sa stru\u010dnjakom za hemofiliju,<\/span><\/i><span style=\"font-weight: 400;\"> koji se fokusira na multidisciplinarnu skrb za osobe s inhibitorima.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">U srijedu, 19. travnja, na Svjetski dan jetre, EHC je odr\u017eao webinar s istaknutim stru\u010dnjacima na temu <\/span><i><span style=\"font-weight: 400;\">Zdravlje jetre: fokus na skrb nakon virusne infekcije i postgenske terapije<\/span><\/i><span style=\"font-weight: 400;\">. Webinar je uklju\u010divao Declana Noonea (moderator), Briana O&#8217;Mahonyja (Irska), Clivea Smitha (Ujedinjeno Kraljevstvo) i prof. Vincenza La Muru (Italija). Ovaj doga\u0111aj imao je tuma\u010denje i na ruskom jeziku. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">U \u010detvrtak, 20. travnja, EHC je organizirao dan od vr\u0161njaka do vr\u0161njaka s online raspravom u zajednici osoba s poreme\u0107ajima zgru\u0161avanja na temu <\/span><i><span style=\"font-weight: 400;\">\u0160to za vas zna\u010di zdravo starenje?<\/span><\/i><span style=\"font-weight: 400;\"> &#8211; stvaranje virtualne galerije koja prikuplja razli\u010dite perspektive. <\/span> <\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t<a href=\"https:\/\/youtube.com\/playlist?list=PL-oiIvBt-bQdcNpwZO8raZFGj8TomI-Ll&#038;feature=shared\" target=\"_blank\" class=\"btn btn-blue with-icon\">\n\t\t\t\t\t\t\t<span>Relive the week<\/span>\n\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t \t<\/div>\n<\/section>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":5324,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-5772","page","type-page","status-publish","hentry"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages\/5772","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/comments?post=5772"}],"version-history":[{"count":2,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages\/5772\/revisions"}],"predecessor-version":[{"id":6281,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages\/5772\/revisions\/6281"}],"up":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/pages\/5324"}],"wp:attachment":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/media?parent=5772"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}