{"id":6194,"date":"2026-02-01T09:53:55","date_gmt":"2026-02-01T08:53:55","guid":{"rendered":"https:\/\/www.ehc.eu\/uncategorized-hr\/europski-dan-podizanja-svijesti-o-von-willebrandovoj-bolesti-2026-ehc-poziva-na-politicko-djelovanje\/"},"modified":"2026-04-02T16:32:08","modified_gmt":"2026-04-02T14:32:08","slug":"europski-dan-podizanja-svijesti-o-von-willebrandovoj-bolesti-2026-ehc-poziva-na-politicko-djelovanje","status":"publish","type":"post","link":"https:\/\/www.ehc.eu\/hr\/uncategorized-hr\/europski-dan-podizanja-svijesti-o-von-willebrandovoj-bolesti-2026-ehc-poziva-na-politicko-djelovanje\/","title":{"rendered":"Europski dan podizanja svijesti o von Willebrandovoj bolesti 2026.: EHC poziva na politi\u010dko djelovanje"},"content":{"rendered":"<!-- hero -->\t<section   class=\"subpage-hero bg-white\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"relative z-10\">\n\t\t\t\t<div class=\"pt-16 lg:pt-24 pb-24 lg:pb-32\">\n\t\t\t\t\t<div class=\"row justify-between gap-10 lg:gap-0 mt-10 text-center lg:text-left\">\n\t\t\t\t\t\t<div class=\"w-full lg:w-6\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h2\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t\t<p class=\"text-[115%]\">Europski dan podizanja svijesti o von Willebrandovoj bolesti 2026.: EHC poziva na politi\u010dko djelovanje<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<figure class=\"absolute size-[41.8rem] lg:size-[82.8rem] bottom-[-10%] right-[-10rem] lg:right-[-5%] image-contain opacity-100 skip-lazy\" data-parallax>\n\t\t\t\t\t<img decoding=\"async\" loading=\"eager\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/themes\/cbd\/img\/content-logo-colorfull-2.svg\" alt=\"content-logo-colorfull\">\n\t\t\t\t<\/figure>\n\t\t\t\t\t\t<\/section>\n<!-- overview -->\t<section   class=\"s-overlay-img s-padding bg-red\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"row w-full lg:flex-row justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t\t\t<div class=\"w-full lg:py-10\">\n\t\t\t\t\t<div class=\"bg-white min-h-full py-12 px-10 lg:py-24 lg:pl-24 xl:pl-44 relative radius-20 z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<h4><b>Osiguravanje pristupa kriti\u010dnim lijekovima ostaje prioritet<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">Na <strong>Europski dan podizanja svijesti o von Willebrandovoj bolesti (VWD),<\/strong> EHC obilje\u017eava ovu prigodu obnavljaju\u0107i svoj poziv da se von Willebrandov faktor uvrsti na Savezni popis kriti\u010dnih lijekova.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Ovogodi\u0161nji Dan podizanja svijesti va\u017ean je podsjetnik da, iako je postignut napredak u podizanju svijesti o VWD-u, zna\u010dajne politi\u010dke praznine i dalje postoje. Nastavak <strong>odsutnosti von Willebrand faktora s popisa kriti\u010dnih lijekova Europske unije<\/strong> predstavlja trajne rizike za kontinuitet skrbi i sigurnost pacijenata diljem Europe. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Dok osvjetljavamo iskustva osoba koje danas \u017eive s VWD-om, EHC ponovno potvr\u0111uje svoju predanost zagovaranju promjena politika potrebnih za za\u0161titu pacijenata i pouzdan pristup osnovnim tretmanima.<\/span><\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.ehc.eu\/wp-content\/uploads\/2026\/01\/VWD-Awareness-Day-2026-EHC-Statement.pdf\" target=\"_blank\" class=\"btn with-icon\">\n\t\t\t\t\t\t\t\t\t<span>Read the full statement here<\/span>\n\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/section>\n<!-- overview -->\t<section   class=\"s-overlay-img s-padding-top overflow-visible\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"row w-full lg:w-10\/12 mx-auto lg:flex-row justify-between text-center lg:text-left relative z-10\">\n\t\t\t\t\t\t\t\t<div class=\"w-full relative z-0\">\n\t\t\t\t\t<div class=\"flex flex-col justify-center items-center lg:items-start bg-white py-12 px-10 lg:py-24 lg:px-24 lg:pl-60 min-h-full relative radius-20 drop-s z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<h4><b>Podr\u0161ka VWD zajednici<\/b><\/h4>\n<p><span style=\"font-weight: 400;\"> <\/span><b>Odbor za VWD EHC-a<\/b><span style=\"font-weight: 400;\"> razvio je resurse za osna\u017eivanje pacijenata i njihovih obitelji:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Otkrijte<strong><a href=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2026\/01\/EHC-VWD-NMO-Handbook-Final.pdf\" target=\"_blank\" rel=\"noopener\"> EHC sveobuhvatni vodi\u010d za VWD ovdje.<\/a><\/strong><\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Otkrijte <strong><a href=\"https:\/\/community.ehc.eu\/news\/new-ehc-childrens-book-now-available-to-help-explain-von-willebrand-disease\/\" target=\"_blank\" rel=\"noopener\">EHC dje\u010dju knjigu o VWD-u ovdje.<\/a><\/strong><\/span><\/li>\n<\/ul>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"bottom mt-12\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<a href=\"https:\/\/community.ehc.eu\/focus-area\/von-willebrand-disease-vwd\/\u00a0\" target=\"_blank\" class=\"btn btn-blue with-icon\">\n\t\t\t\t\t\t\t\t\t<span>Learn more on our Community website<\/span>\n\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t<figure class=\"absolute size-[45rem] lg:size-[82.8rem] bottom-[-30%] right-[-5%] image-contain opacity-50 pointer-events-none\" data-parallax>\n\t\t\t<img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/themes\/cbd\/img\/content-logo-colorfull-2.svg\" alt=\"content-logo-colorfull\">\n\t\t<\/figure>\n\t<\/section>\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<div class=\"jetpack-video-wrapper\"><iframe loading=\"lazy\" title=\"Von Willebrand Disease Awareness Day 2026: Making the Invisible Visible\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/hWPzxpZWx0k?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<\/div><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>EHC obilje\u017eava ovu prigodu obnovom poziva da se faktor von Willebrand uklju\u010di na popis kriti\u010dnih lijekova Europske unije.<\/p>\n","protected":false},"author":4,"featured_media":5418,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[98,55],"tags":[136,100,129,212],"class_list":["post-6194","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-svijest","category-uncategorized-hr","tag-kampanja","tag-kampanja-za-podizanje-svijesti","tag-stajaliste","tag-vwd"],"acf":[],"jetpack_featured_media_url":"https:\/\/etngbd86n6b.exactdn.com\/wp-content\/uploads\/2026\/01\/VWD-Day-2026-Blog-Banner.jpg?strip=all&sharp=1","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/posts\/6194","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/comments?post=6194"}],"version-history":[{"count":1,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/posts\/6194\/revisions"}],"predecessor-version":[{"id":6196,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/posts\/6194\/revisions\/6196"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/media\/5418"}],"wp:attachment":[{"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/media?parent=6194"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/categories?post=6194"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ehc.eu\/hr\/wp-json\/wp\/v2\/tags?post=6194"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}