Close collaboration with a comprehensive team of medical experts is essential to the European Haemophilia Consortium (EHC) work. In 2017, the EHC created the Medical and Scientific Advisory Group (MASAG) with the objectives to:

  • Help ensure a multidisciplinary approach to the work of the EHC,
  • Provide advice and guidance on specific areas of EHC engagement,
  • Provide strategic input into specific event programmes and activities as necessary, and
  • Provide hands-on, in-person support in crucial events as needed

The Medical and Scientific Advisory Group is composed of the following:

      • Rezan Abdul-Kadir
        Consultant Gynecologist with a subspecialty in fetal medicine
        Royal Free NHS Foundation Trust, London, UK
      • Massimo Colombo 
        Hepatologist and Director of the Center for Translational Research in Liver Disease at the Humanitas Research Hospital
        Rozzano, Italy
      • Piet De Kleijn
        University Medical Centre Utrecht, the Netherlands
      • Roseline d’Oiron
        Clinician investigator
        Reference Centre for Haemophilia and Other Congenital Rare Bleeding Disorders, Congenital Platelet Disorders and von Willebrand Disease at Bicêtre Hospital AP-HP, Paris XI University, Le Kremlin-Bicêtre, France
      • Alison Dougall 
        Dentist and clinical consultant in special care dentistry
        Dublin Dental University Hospital
        Dublin, Ireland
      • Carmen Escuriola-Ettinghausen 
        Paediatrician and Director of the Haemophilia Centre Rhein-Main
        Frankfurt, Germany
      • Albert Farrugia 
        Professor Faculty of Health and Medical Science
        The University of Western Australia, Perth, Australia.
      • Anneliese Hilger  
        Regulatory Advisor, head of the “Blood Coagulation Products” section at the Paul-Ehrlich-Institut
        Langen, Germany
      • Radoslaw Kaczmarek
        Post-doctoral Research Associate
        Indiana University School of Medicine, Indianapolis, USA
      • Evelien Mauser-Bunschoten 
        Haemophilia Specialist
        University Medical Centre, Utrecht, the Netherlands
      • Beatrice Nolan
        Paediatrician and Lead Consultant Haematologist about paediatric haemophilia and allied bleeding disorders at Our Lady’s Children’s Hospital in Crumlin
        Dublin, Ireland
      • Cristina Novembrino 
        Laboratory Scientist and researcher focusing on diagnostic activity and management of research protocols in thrombosis and haemostasis at the Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico.
        Milan, Italy
      • Jamie O’Hara
        Health Economist, health economics lead on an expert panel piloting proof of concept for the development and implementation of a global haemophilia registry and Senior Lecturer in Health Economics at the University of Chester
        Chester, United Kingdom
      • Brian O’Mahony
        Brian is the former President of the European Haemophilia Consortium (EHC) and the Chief Executive of the Irish Haemophilia Society.
      • Debra Pollard
        Lead Nurse at the Katharine Dormandy Haemophilia & Thrombosis Centre at the Royal Free Hospital
        London, United Kingdom
      • Frits Rosendaal 
        Epidemiologist and professor of clinical epidemiology at the Leiden University Medical Centre
        Leiden, Netherlands
      • Glenda Silvester
        Regulatory Advisor previously worked for 18 years at the European Medicines Agency (EMA), where she was the lead for blood products. She was the Scientific Secretary of the Blood Products Working Party, which provides recommendations on matters relating to the efficacy and safety of blood products.
        London, United Kingdom
      • Luigi Solimeno
        Director, Emergency and Trauma Department, Rare Disease Service
        IRCCS Cà Grande Foundation, Milan, Italy
      • Thierry Vanden Driessche 
        Director, Department of Gene Therapy and Regenerative Medicine
        Free University (VUB), Brussels, Belgium