Close collaboration with a comprehensive team of medical experts is essential to the European Haemophilia Consortium (EHC) work. In 2017, the EHC created the Medical and Scientific Advisory Group (MASAG) with the objectives to:

  • Help ensure a multidisciplinary approach to the work of the EHC,
  • Provide advice and guidance on specific areas of EHC engagement,
  • Provide strategic input into specific event programmes and activities as necessary, and
  • Provide hands-on, in-person support in crucial events as needed

The Medical and Scientific Advisory Group is composed of the following:

      • Rezan Abdul-Kadir
        Consultant Gynecologist with a subspecialty in fetal medicine
        Royal Free NHS Foundation Trust, London, UK
      • Massimo Colombo 
        Hepatologist and Director of the Center for Translational Research in Liver Disease at the Humanitas Research Hospital
        Rozzano, Italy
      • Piet De Kleijn
        University Medical Centre Utrecht, the Netherlands
      • Roseline d’Oiron
        Clinician investigator
        Reference Centre for Haemophilia and Other Congenital Rare Bleeding Disorders, Congenital Platelet Disorders and von Willebrand Disease at Bicêtre Hospital AP-HP, Paris XI University, Le Kremlin-Bicêtre, France
      • Alison Dougall 
        Dentist and clinical consultant in special care dentistry
        Dublin Dental University Hospital
        Dublin, Ireland
      • Carmen Escuriola-Ettinghausen 
        Paediatrician and Director of the Haemophilia Centre Rhein-Main
        Frankfurt, Germany
      • Albert Farrugia 
        Professor Faculty of Health and Medical Science
        The University of Western Australia, Perth, Australia.
      • Radoslaw Kaczmarek
        Post-doctoral Research Associate
        Indiana University School of Medicine, Indianapolis, USA
      • Evelien Mauser-Bunschoten 
        Haemophilia Specialist
        University Medical Centre, Utrecht, the Netherlands
      • Beatrice Nolan
        Paediatrician and Lead Consultant Haematologist about paediatric haemophilia and allied bleeding disorders at Our Lady’s Children’s Hospital in Crumlin
        Dublin, Ireland
      • Cristina Novembrino 
        Laboratory Scientist and researcher focusing on diagnostic activity and management of research protocols in thrombosis and haemostasis at the Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico.
        Milan, Italy
      • Jamie O’Hara
        Health Economist, health economics lead on an expert panel piloting proof of concept for the development and implementation of a global haemophilia registry and Senior Lecturer in Health Economics at the University of Chester
        Chester, United Kingdom
      • Brian O’Mahony
        Brian is the former President of the European Haemophilia Consortium (EHC) and the Chief Executive of the Irish Haemophilia Society.
      • Debra Pollard
        Lead Nurse at the Katharine Dormandy Haemophilia & Thrombosis Centre at the Royal Free Hospital
        London, United Kingdom
      • Frits Rosendaal 
        Epidemiologist and professor of clinical epidemiology at the Leiden University Medical Centre
        Leiden, Netherlands
      • Luigi Solimeno
        Director, Emergency and Trauma Department, Rare Disease Service
        IRCCS Cà Grande Foundation, Milan, Italy
      • Thierry Vanden Driessche 
        Director, Department of Gene Therapy and Regenerative Medicine
        Free University (VUB), Brussels, Belgium