EHC cancels its events until June 2020

It is with great sadness that we announce that in light of the current COVID-19 pandemic, the EHC Steering Committee has decided to cancel all EHC events until June 2020 included. In order to continue to fulfil our missions of raising awareness about bleeding disorders and supporting our national member organisations, most of the planned [...]

In Memoriam of Dr Theis Bacher

It is with great sadness that the EHC has learned about the passing of Dr Theis Bacher on March 13th 2020. Theis Bacher was heavily involved in the Danish NMO – Danmarks Bløderforening – for many years, where his national community benefitted from both his professional experience as a doctor and his personal experience as […]

EHC Round Table on Patient-Clinician Education Models postponed from May to October 2020

Due to current situation with COVID-19 pandemic, EHC has decided to postpone the Round Table of Stakeholders dedicated to Patient-Clinician Education models, which was originally planned for May 2020. The Round Table event on Patient-Clinician Education Models is now planned in October 2020 and will be organised on the same day as the Round Table […]

Updated EHC COVID-19 Position Statement

The European Haemophilia Consortium (EHC) continues to closely monitor and evaluate the spread of novel coronavirus (COVID19). This is an update to the EHC’s January position statement, available here. Situation in Europe Transmission of COVID19 in Europe is dynamic and rapidly evolving. The EHC refers readers to the European Centre for Disease Prevention and Control [...]

UPDATED COVID19 COMMUNICATION

The European Haemophilia Consortium (EHC) wishes to inform its community that, due to the Coronavirus (COVID19) pandemic, the EHC has decided to CANCEL its April events, namely the Youth Leadership Workshop (Amsterdam, April 3-5) and World Haemophilia Day (Brussels, April 24). Alternative arrangements are currently being planned; stay tuned to the EHC communication channels for […]

The European Haemophilia Consortium (EHC) continues to closely monitor the evolution of the Coronavirus (COVID19) pandemic. 

The European Haemophilia Consortium (EHC) continues to closely monitor the evolution of the Coronavirus (COVID19) pandemic.  The EHC is currently evaluating the situation in Europe and will issue a statement soon with regard to upcoming EHC events. In the meantime, the EHC kindly requests its community to uphold a spending embargo until further notice (e.g. […]

EHC moves offices

In March 2020, the European Haemophilia Consortium (EHC) has moved offices. Its offices are now located at: Rue de la Loi/ Wetstraat 28, BE-1040, Brussels, Belgium. The office can be reached by phone at + 32.343.41.26.  EHC staff members email addresses remain the same.  

In Memoriam of Dr Axel Seuser

It is with great sadness that the EHC has learned about the sudden and tragic passing of Dr Axel Seuser on February 5th 2020. Dr Seuser specialised in a variety of fields – alongside several specialties including research in motion analysis, biomechanics, sports training and prevention, sports medicine, haemophilia, pain, osteoporosis, orthopaedic problems in children […]

EHC issues position statement on Coronavirus outbreak

The European Haemophilia Consortium (EHC) is closely following the recent developments on the emergence of the Coronavirus (2019-nCov) outbreak in Wuhan, Hubei Province, China as it relates to: Infection risks in Europe; Safety of plasma proteins used in the manufacturing of treatment products; and Potential risks with international travel. Infection risks in Europe: The EHC [...]

Call for volunteers to join the EHC VWD Working Group

‘I never realised the impact my diagnosis had on me while I was growing up, it was always on my mind, I always worried about a bleed. Now with more education, support and treatment my life has totally changed. That’s what happened for me with the help of my NMO – if we can even […]