EHC annual survey – Deadline extended

The European Haemophilia Consortium (EHC) is extending the deadline for answers for its survey on Von Willebrand Disease (VWD). The EHC hopes that information collected through this survey will help in better understanding the challenges faced by people affected by VWD and what actions can be taken to improve access to treatment, support and care […]

European Haemophilia Consortium (EHC) Communication on Particulate Matter in Emicizumab (Hemlibra®) and Other Biologic Agents

European Haemophilia Consortium (EHC) Communication on Particulate Matter in Emicizumab (Hemlibra®) and Other Biologic Agents  Background information: Since the development of intravenous therapies, the presence of particulate matter in injectable drugs has been a concern for clinicians and patients. While some particles can come from outside sources (e.g. when the product is prepared for use), […]

EHC activities in July, August and September 2019

The EHC was up to a busy summer and month of September and to mark the end of the month, and ahead of our Conference, we give you a quick recap of all of our activities. July EHC representatives attended the Congress of the International Society of Thrombosis and Haemostasis (ISTH) held in Melbourne, Australia [...]

EHC attends conferences on novel technologies and inhibitors

Participants at the 10th BIC Conference. To keep abreast with the latest scientific and medical updates on novel technologies in haemophilia and inhibitor treatment, EHC staff and steering committee members attended in September two major scientific conferences. The first event was two joint conferences: the 10th edition of the BIC International Conference and the third [...]

EHC annual survey – focusing on Von Willebrand Disease

Calling on all people with Von Willeband Disease (VWD), we have just launched our annual survey on VWD in Europe. We are hoping that information collected through this survey will help in better understanding the challenges faced by people affected by VWD and what actions can be taken to improve access to treatment, support and […]

FOR IMMEDIATE RELEASE – The European Haemophilia Consortium releases film Women and Bleeding Disorders for worldwide distribution

Press release The European Haemophilia Consortium releases film Women and Bleeding Disorders for worldwide distribution (Brussels, Belgium – May 29, 2019) The European Haemophilia Consortium (EHC) today announced the release of the film Women and Bleeding Disorders from director Goran Kapetanović. In creating this groundbreaking film, the European Haemophilia Consortium has begun the process of [...]

EURORDIS launches new edition of its project “Support to European Federations”

EURORDIS has launched a new edition of its project "Support to European Federations". The programme aims at providing small, quick and flexible financial support for the organisation or participation in European meetings, training sessions, project development, workshops and conferences, to promote patient empowerment through capacity building and European networking between patient organisation representatives in disease [...]

EHC publishes new issue of periodic review on advances in haemophilia treatment

The European Haemophilia Consortium (EHC) has published the second issue (2019 Issue 1) of its 'Novel treatments in haemophilia and other bleeding disorders: A periodic EHC review.' In this issue we review any developments in novel technologies in haemophilia and other rare bleeding disorders that occurred since May 2018, when the first issue was published. [...]

EHC Now! Compilation Newsletter Sep ’18 – Jan ’19

The EHC Now! Compilation Newsletter gathering all EHC Now! articles from September 2018 to January 2019 is now out! In this edition, you will also find contributions from our Round Table sponsors. We hope you will enjoy reading it! Consult the EHC Now! Compilation Newsletter here. In this issue: A message from the EHC President […]

Roche joins the EHC PARTNERS programme

Today Roche becomes the third company to join the European Haemophilia Consortium’s (EHC) innovative programme: Procurement of Affordable Replacement Therapies – Network of European Stakeholders (PARTNERS). This programme aims to improve access to medicines for haemophilia in European countries that do not meet minimum standards of haemophilia care as set by the Council of Europe […]