Annabel’s story

Believe, educate, advocate – a #thisway story In the framework of our #thisway campaign, the EHC interviewed Annabel Kattai (23), a patient with von Willebrand Disease, who shared with us how she overcame her struggles around sports and injections, and how she looks after her mental and physical health. We hope you find Annabel's story inspirational and her [...]

End-of-the-year Message from the EHC President Miguel Crato

We are about to say goodbye to 2023 and go into 2024. The year that is now ending was full of challenges and changes for our organisation, but also an opportunity to recognise what the missing pieces were to make the EHC aligned with its core objectives: the National Member Organisations (NMOs) and the tangible […]

William’s story

'It's not "I have to exercise", it's "I need to learn to love exercise and find what is right for me".' In the framework of our #thisway campaign, the EHC interviewed William McKeown (32), a patient with severe haemophilia A, who shared with us how he improved his mental and physical health and built sustainable healthy habits by [...]

EHC 2023 Conference – Day passes available to NMOs

To facilitate participation from patient representatives, the European Haemophilia Consortium (EHC) is offering its national member organisations (NMOs) the opportunity to purchase individual day passes to attend the EHC 2023 Conference. The day passes vary in price, starting at €30. To benefit from the day passes, delegates need to prove they are a member of [...]

Baxject II/Baxject II Hi-Flow® Reconstitution Devices

Background information:  Since the development of intravenous therapies, the presence of particulate matter in injectable drugs has been a concern for clinicians and patients. While some particles can come from outside sources (e.g. when the product is prepared for use), others are “intrinsic” to the manufacturing process specific to the drug. In the latter case, sources […]

EHC President Declan Noone steps down

Members of the Steering Committee of the European Haemophilia Consortium (EHC) regret to inform you that EHC's serving President, Mr Declan Noone, has resigned. Mr Noone was elected President in October 2019, months ahead of severe travel and personal movement restrictions imposed to curb the spread of COVID-19. His term was marked by the pandemic [...]

EHC holds Innovation Summit

The first-ever EHC Think Tank Innovation Summit is in the books! After several virtual workshops, this one-day event allowed members of the Registries and Patient Agency workstreams to finally meet in person and develop their chosen concepts with the help of experienced facilitators and excellent input from external advisors. We’re grateful for the hard work [...]

New CEO joins the EHC Swiss NMO

A month ago, Camilla Wensig joined the Swiss Haemophilia Society as its new CEO, replacing Mr Jörg Kruger. In this newsletter, we wish to briefly introduce Camilla and welcome her to the European bleeding disorders community. Hello, I am Camilla Wensing, born in Sweden and living in Interlaken, Switzerland, since 1992. I am married to [...]

EHC Hungarian MNO elects new President

The Hungarian NMO recently welcomed a new President, Mrs Ildiko Kaslik, who follows Mr Zoltan Keszthelyi. Please welcome Mrs Kaslik to her new role and the European Bleeding Disorders Community. Ildiko describes herself as a “corporate finance professional, coffee addict, business coach, and now the president of the Hungarian Haemophilia Society.” Ildiko tells us that “As a [...]

EHC Belgian NMO elects new President

The EHC Belgian National Member Organisation, AHVH, has recently welcomed new board members, including a new President, Mrs Sarah De Witte. We want to introduce Mrs De Witte to the community in this newsletter edition. Please join us in welcoming Mrs De Witte to her new role.  As the new president, I would like to [...]