Take-aways from the EHC webinar on Women and Bleeding Disorders

On 29 May 2021, the European Haemophilia Consortium (EHC) Committee on Women and Bleeding Disorders held a webinar on three topics about women and bleeding disorders, including: Preparing for menarche, Fertility, and Ageing. Here below is a summary of the discussions and take-away messages for each session. This event was developed by the EHC Women [...]

Join the EHC for #thisway campaign in 2021!

This year, alongside the physical activity we will look into other aspects of wellbeing - mental, emotional, social and environmental! We invite you to come #thisway to wellbeing with us! Be active! Connect! Take notice! Give! Keep learning! In the warm and green months of the year, leading up to the EHC Conference in October, [...]

The UK contaminated blood enquiry resumed yesterday

Politicians in the UK to appear before contaminated blood public inquiry The Infected Blood Inquiry resumed its hearings yesterday (18 May) in London with politicians past and present called to give evidence. The inquiry, which opened in 2018, investigates the contaminated blood scandal of the 1970s and 80s, which resulted in 4,689 people with haemophilia [...]

EHC update on COVID-19 vaccines

17 May 2021 The European Haemophilia Consortium (EHC) continues to closely monitor developments with the COVID-19 pandemic and associated roll-out of COVID-19 vaccines. The EHC wishes to inform its community of the following recent Notice by French government authorities. On May 7th French vaccination authorities, Le Conseil d’Orientation de la Stratégie Vaccinale, issued a recommendation [...]

WFH and EHC release joint statement on AstraZeneca COVID-19 vaccine

EMA, ISTH, WHO and many countries recommend benefit of COVID-19 vaccination outweighs the risks  Risks of adverse events no higher in people with bleeding disorders The European Medicines Agency (EMA) Pharmacovigilance Risk Assessment Committee (PRAC), following investigation of isolated cases of unusual blood clotting with low blood platelets that have occurred in a small number [...]

Call for additional volunteer to join the EHC VWD Working Group

‘I never realised the impact my diagnosis had on me while I was growing up, it was always on my mind, I always worried about a bleed. Now with more education, support and treatment my life has totally changed. That’s what happened for me with the help of my NMO – if we can even […]

EAHAD Physiotherapists Network is looking for members

The European Association for Haemophilia and Allied Disorders (EAHAD) is looking for physiotherapists interested in haemophilia and other rare bleeding disorders to join its European Physiotherapists Network. EAHAD is a multidisciplinary association of healthcare professionals providing care for individuals affected by rare bleeding disorders. The EAHAD European Physiotherapists Network is an initiative of its Physiotherapists [...]

World Oral Health Day 2021

Putting a spotlight on the mouth - World Oral Health Day 2021 As you may know, this patient population, if left untreated, can experience significant bleeds, including in the mouth. However, when properly managed, these patients shouldn’t face any increased complication in dental health. Unfortunately, many patients and treating dentists fear each other, often due [...]

Position Statement on COVID-19 Astra Zeneca Vaccine

The European Haemophilia Consortium (EHC) has been closely monitoring the recent safety signal of blood clots in some recipients of the COVID-19 Vaccine AstraZeneca and wishes to inform its community of the following. The European Medicines Agency (EMA) safety committee, PRAC (Pharmaceutical Risk Assessment Committee), following its preliminary review of this safety signal, concluded that [...]

New member on the EHC Steering Committee

We are pleased to announce that Manon Degenaar-Dujardin, from the Dutch NMO, has been co-opted by the EHC Steering Committee! As many will already know, Manon is Vice-President of the Dutch NMO and has been chairing the EHC von Willebrand Disease Working Group since 2020. Manon will be a wonderful asset to the EHC Steering [...]