EHC annual survey – focusing on Von Willebrand Disease

Calling on all people with Von Willeband Disease (VWD), we have just launched our annual survey on VWD in Europe. We are hoping that information collected through this survey will help in better understanding the challenges faced by people affected by VWD and what actions can be taken to improve access to treatment, support and […]

FOR IMMEDIATE RELEASE – The European Haemophilia Consortium releases film Women and Bleeding Disorders for worldwide distribution

Press release The European Haemophilia Consortium releases film Women and Bleeding Disorders for worldwide distribution (Brussels, Belgium – May 29, 2019) The European Haemophilia Consortium (EHC) today announced the release of the film Women and Bleeding Disorders from director Goran Kapetanović. In creating this groundbreaking film, the European Haemophilia Consortium has begun the process of [...]

EURORDIS launches new edition of its project “Support to European Federations”

EURORDIS has launched a new edition of its project "Support to European Federations". The programme aims at providing small, quick and flexible financial support for the organisation or participation in European meetings, training sessions, project development, workshops and conferences, to promote patient empowerment through capacity building and European networking between patient organisation representatives in disease [...]

EHC publishes new issue of periodic review on advances in haemophilia treatment

The European Haemophilia Consortium (EHC) has published the second issue (2019 Issue 1) of its 'Novel treatments in haemophilia and other bleeding disorders: A periodic EHC review.' In this issue we review any developments in novel technologies in haemophilia and other rare bleeding disorders that occurred since May 2018, when the first issue was published. [...]

EHC Now! Compilation Newsletter Sep ’18 – Jan ’19

The EHC Now! Compilation Newsletter gathering all EHC Now! articles from September 2018 to January 2019 is now out! In this edition, you will also find contributions from our Round Table sponsors. We hope you will enjoy reading it! Consult the EHC Now! Compilation Newsletter here. In this issue: A message from the EHC President […]

Roche joins the EHC PARTNERS programme

Today Roche becomes the third company to join the European Haemophilia Consortium’s (EHC) innovative programme: Procurement of Affordable Replacement Therapies – Network of European Stakeholders (PARTNERS). This programme aims to improve access to medicines for haemophilia in European countries that do not meet minimum standards of haemophilia care as set by the Council of Europe […]

Medscape Offers Haemophilia Gene Therapy Education for Health Care Providers

After many years, gene therapy in patients with haemophilia has started to show promising results in alleviating symptoms and improving the disease phenotype. Medscape has launched a new education program for providers seeking to enhance their knowledge of gene therapy for haemophilia. “Clinical Advances in Gene Therapy for Haemophilia” is presented through a collaboration between […]

EHC and EAHAD release joint statement on novel non-replacement therapies

Registration for the 2018 EHC Inhibitor Summit is now open

After the great success of the two previous Inhibitor Summits organised by the European Haemophilia Consortium (EHC), we are delighted to announce the third annual EHC Inhibitor Summit that will take place in Barretstown, Ireland from 6 – 9 December 2018. The purpose of the Inhibitor Summit is to offer a special time and space […]

Call for EHC Youth Committee 2018-2020 Candidates

The EHC is currently looking for three youth candidates and an advisor to sit on its Youth Committee for the next three years (2018-2020) to support the development of the EHC Youth Leadership Workshop and other EHC youth-related activities. This is a great opportunity to become involved in the planning, action and education events directed at the […]