The day-to-day activities of the EHC are managed by a small Brussels-based team.
Amanda Bok, CEO
Amanda Bok has been CEO of the European Haemophilia Consortium (EHC) since late 2012.
Amanda first became involved with haemophilia when she joined the World Federation of Hemophilia (WFH) in 2009 in a communications capacity and later managed their international advocacy program. Before this, Amanda focused her efforts on international humanitarian aid and human rights issues, particularly child rights, in times of armed conflict. She worked for the International Committee of the Red Cross (ICRC) in Geneva and New York. First, she helped coordinate the delivery of humanitarian aid with the United Nations (UN) agencies in Geneva. Later she represented the ICRC in meetings and negotiations of the UN General Assembly and Security Council in New York.
She also previously worked for the European Commission’s Humanitarian Aid Office, Brussels-based think tank Friends of Europe and a US regional newspaper. Born in Bolivia, Amanda grew up in Colombia, Mexico, the United States, Switzerland and the Netherlands. She has a German passport and speaks English, French, Spanish, German and Dutch.
Amanda has a Master’s degree in Environment and Development from the London School of Economics and Political Science (UK), and a Bachelor’s degree in International Relations and English Literature from Austin College (US).
Fiona Brennan, Community Programmes Officer
Fiona joined the EHC in 2017 and is currently one of the Community Programmes Officers, with her work focusing on youth-related activities including training and workshops and the Youth Fellowship Programme.
Fiona previously worked for the Irish Haemophilia Society for eight years. Fiona has a degree and Masters in Psychology from Trinity College Dublin and is currently completing her PhD in Psychotraumatology.
Thierry Hoppe, Office Administrator
Thierry Hoppe is the EHC Office Administrator. He joined the EHC in 2019. In his position, Thierry supports the EHC CEO and Vice-President Finance with regard to financial and human resources (HR) matters. Prior to joining the EHC, Thierry served as Finance & HR Manager for 12 years in a Brussels-based not-for-profit federation focused on cancer. Thierry holds an MBA from the University of Liège.
Kristine Jansone, Community Programmes Officer
Kristine Jansone comes to the EHC with ten years of work experience in the not-for-profit sector with a focus on youth engagement and volunteering.
In the six years prior to the EHC, Kristine led the Ecumenical Youth Council’s work in Europe (EYCE), a Brussels-based Christian youth network working towards bringing together young Christians from different denominations to overcome issues such as nationalism, xenophobia, social exclusion, and proselytism. The sole employee of EYCE, Kristine was led to work independently and has gained much experience in managing multiple projects, including the organisation of events, youth training, multi-annual campaigns as well as communication projects.
She has a background in education, communication, and marketing. A Latvian national, Kristine speaks Latvian, English, and Russian as well as some French and Swedish. Kristine has an academic background in theology, pedagogy, and management of culture.
Nastassia Kisialeva, Communications and Public Policy Officer
Nastia joined the EHC in January 2020 as Communications and Public Policy Officer and as such she supports the EHC in its Communications and Public Policy activities together with Laura Savini.
Nastia is a dual Belgian and Belarussian national. She was born in Belarus and moved to Belgium as a child where she spent most of her life and where she did her studies. Prior to joining the EHC, Nastia worked for the Belgian Ministry of Defence as a security analyst providing translation services for English and Russian. Nastia has also experience in working on a European project in the area of veterinary science.
She is a certified translator for Russian, English and French and is also fluent in Dutch and Spanish.
Saskia Pfeyffer, Office Assistant
Saskia Pfeyffer joined the EHC in 2016 as the Office Assistant and deals with administrative and accounting tasks and supports the smooth running of the office and its activities. Prior to this, Saskia has worked for more than ten years in the field of women’s health and rights. Saskia worked for the European Parliamentary Forum on Population and Development (EPF) and Care international.
Saskia is Dutch and speaks English, French and Dutch and has a bachelor degree in European studies from the University of The Hague, the Netherlands.
Laura Savini, Communications and Public Policy Officer
Laura Savini joined the EHC in 2014 as Communications and Public Policy officer. Prior to the EHC, Laura worked in a Brussels-based pharmaceutical trade association.
A dual Belgian and Italian national, Laura has lived both in Belgium and Italy and is fluent in French, Italian and English. Laura holds a Masters’ degree in Information Management from Aberystwyth University in the United Kingdom and a Bachelor’s degree in management assistance from a secretarial college in Brussels.
Naja Skouw-Rasmussen, Think Tank Officer
Naja joined the EHC in March 2021 as a Think Tank Officer. In this role, Naja will be coordinating and leading the activities of the EHC Think Tank. Before joining the EHC, Naja sat on the EHC Steering Committee from 2015 to 2021.
Naja brings to the EHC a wealth of experience as a volunteer in haemophilia patient organisations at the national (Denmark) and international level. Naja was previously the chair of the EHC Women and Bleeding Disorders Committee and took part in EHC youth training.
Naja holds a Masters in Science from both the University of Copenhagen and the School of Oriental and African Studies in London. A Danish national Naja speaks both Danish and English.