EHC Staff

A small Brussels-based team manages the day-to-day activities of the EHC.

Amanda Bok, CEO


Amanda Bok has been CEO of the European Haemophilia Consortium (EHC) since late 2012.

Amanda first became involved with haemophilia when she joined the World Federation of Hemophilia (WFH) in 2009 in a communications capacity and later managed their international advocacy program. Before this, Amanda focused her efforts on international humanitarian aid and human rights issues, particularly child rights, in times of armed conflict. She worked for the International Committee of the Red Cross (ICRC) in Geneva and New York. First, she helped coordinate the delivery of humanitarian aid with the United Nations (UN) agencies in Geneva. Later she represented the ICRC in meetings and negotiations of the UN General Assembly and Security Council in New York.

She previously worked for the European Commission’s Humanitarian Aid Office, Brussels-based think tank Friends of Europe and a US regional newspaper. Born in Bolivia, Amanda grew up in Colombia, Mexico, the United States, Switzerland and the Netherlands. She has a German passport and speaks English, French, Spanish, German and Dutch.

Amanda has a Master’s degree in Environment and Development from the London School of Economics and Political Science (UK) and a Bachelor’s degree in International Relations and English Literature from Austin College (US).

Jeanette Fava, Operations Director

jeanette.fava[at]; accounting[at]

Jeanette Fava is the EHC’s Operations Director. Ms Fava joined the EHC in June 2022 and will be overseeing the EHC’s financial and administrative activities as well as managing the EHC’s human resources.

Jeanette Fava has an extensive experience in finance and administration both at national and international levels and throughout her career she worked in the private, government and non-profit sectors. She has been the project leader of numerous multinational projects, most of which has been co-funded by the European Commission under various programmes.

She served as a diplomat in Brussels for the Maltese government between 2015 and 2017 and contributed to the write-up of various Council Conclusions and position papers  at the Council of the European Union. Her published works include a research on the EU decision-making process, where she provided recommendations to the European Commission about how it could be more transparent and fairer among all member states.

She has a good network with many international NGOs, big think tanks, World Bank, US, several DGs from the European Commission as well as MEPs.

She speaks various languages including Italian, Dutch, French, Maltese and English and studied at the Universities of London, Oxford and Malta, and at the ‘Ecole National d’Administration (ENA)’ in Strasbourg, France. Amongst other qualifications, she has a Bachelor of Commerce in Finance, an Executive Master of Business Administration, and a PhD in Business Management.

Fiona Brennan, Community Programmes Officer


Fiona joined the EHC in 2017 and is currently one of the Community Programmes Officers, with her work focusing on youth-related activities including training and workshops and the Youth Fellowship Programme.

Fiona previously worked for the Irish Haemophilia Society for eight years. Fiona has a degree and Masters in Psychology from Trinity College Dublin and is currently completing her PhD in Psychotraumatology.

Zita Gacser, Think Tank Officer


Zita joined the EHC in 2022 as a Think Tank Officer.

Before joining EHC, Zita worked for various Brussels-based membership organisations focusing on communications, event organisation and project management. Besides her work with EHC, Zita also works as a fitness and lifestyle coach, focusing on mental and physical wellbeing.

Zita has an academic background in international relations. She is a Hungarian national and speaks Hungarian, English and Dutch.

Kristine Jansone, Community Programmes Officer


Kristine Jansone joined the EHC in 2015, with ten years of work experience in the not-for-profit sector focusing on youth engagement and volunteering.

She has a background in education, communication, and marketing. A Latvian national, Kristine speaks Latvian, English, French and Russian. Kristine has an academic background in theology, pedagogy, and culture management.

Daria Mironova, Public Policy and Communications Officer

Daria joined the EHC in December 2021 as its Public Policy and Communications Officer. 

Initially, she started her career in international affairs. Daria then switched to international business and worked in various thematic areas, including media, science, technology, and youth. She has a long track record in partnership building, stakeholder- and event management, and team leadership.

A native Russian, Daria holds two master’s degrees in international relations and foreign policy and economics. Daria speaks Russian, English and French languages. In her free time, she plays the violin.

Rumana Molla, Executive secretary/ Personal Assistant


Rumana Molla joined the EHC in 2021 as the Executive secretary and Amanda Bok’s assistant. She supports Amanda Bok and Declan Noone in their day-to-day activities and communications. After graduating from IHECS in Mass Communication, Rumana worked as a Communication Officer at FEBE and La Poste. She has also spent several years in India, working in the television industry.

Rumana is Belgian and speaks English, French, Dutch, Hindi, Bengali and some Spanish.

Saskia Pfeyffer, Office Assistant


Saskia Pfeyffer joined the EHC in 2016 as the Office Assistant, deals with administrative and accounting tasks, and supports the smooth running of the office and its activities. Before this, Saskia worked for more than ten years in women’s health and rights. Saskia worked for the European Parliamentary Forum on Population and Development (EPF) and Care international.

Saskia is Dutch and speaks English, French and Dutch and has a bachelor’s degree in European studies from the University of The Hague, the Netherlands.

Laura Savini, Communications and Public Policy Officer


Laura Savini joined the EHC in 2014 as a Communications and Public Policy officer. Before the EHC, Laura worked in a Brussels-based pharmaceutical trade association.

A dual Belgian and Italian national, Laura has lived in Belgium and Italy and is fluent in French, Italian and English. Laura holds a master’s degree in Information Management from Aberystwyth University in the United Kingdom and a Bachelor’s degree in management assistance from a secretarial college in Brussels.

Naja Skouw-Rasmussen, Think Tank Officer


Naja joined the EHC in March 2021 as a Think Tank Officer. In this role, Naja is coordinating and leading the activities of the EHC Think Tank. Before joining the EHC, Naja sat on the EHC Steering Committee from 2015 to 2021.

Naja brings to the EHC a wealth of experience as a volunteer in haemophilia patient organisations at the national (Denmark) and international level. Naja was previously the chair of the EHC Women and Bleeding Disorders Committee and took part in EHC youth training.

Naja holds a Masters in Science from both the University of Copenhagen and the School of Oriental and African Studies in London. A Danish national Naja speaks both Danish and English.