The European Haemophilia Consortium (EHC) has launched a survey to learn more about women with bleeding disorders and carriers in Europe. The survey, open until 5 November, aims to identify women with bleeding disorders...
The European Haemophilia Consortium (EHC) has launched a call for volunteers to join its newly established Committee for Women and Bleeding Disorders. The EHC Women and Bleeding Disorders Committee has been established to create...
We are saddened to inform that Alnylam Pharmaceuticals has reported a fatal thrombotic event in a patient with haemophilia A without inhibitors in the Phase 2 open-label extension (OLE) study of fitusiran. Fitusiran is an...
Every three years since 2009, the European Haemophilia Consortium (EHC) has conducted surveys amongst its 45 national haemophilia member organisations to determine the extent to which the European Principles of Haemophilia Care and the...
A paper has just been published in the official journal of the Centers of Disease Control and Prevention (CDC) relating to the death of 2 people with inherited bleeding disorders (one was a female...
On April 19th, the EHC marked World Haemophilia Day in Strasbourg, France with an event dedicated to the latest Wildbad Kreuth IV consensus recommendations on optimal haemophilia care throughout Europe! These recommendations are the...
As part of its continues efforts to improve the quality of life of people living with rare bleeding disorders throughout Europe, the European Haemophilia Consortium (EHC) has developed and launched the Procurement of Affordable...
We are saddened to share that in the past week, the EHC has been informed of the death of a person with haemophilia with inhibitors, who was on the clinical trial (HAVEN 1) with...
Novo Nordisk has informed the World Federation of Hemophilia and the European Haemophilia Consortium that in January of this year, the company initiated a recall of 3 batches of the recombinant factor FVIII product...
The European Haemophilia Consortium (EHC) released the report of its last Round Table on Outcome Measures in Haemophilia, held on November 28th in the European Parliament. For everything surrounding the event, including presentations, agenda and...
