In Memoriam of Dr Axel Seuser
It is with great sadness that the EHC has learned about the sudden and tragic passing of Dr Axel Seuser on February 5th 2020. Dr Seuser specialised in a variety of fields – alongside...
EHC NOW! An update from EHC Headquarters January 2020!
However, without the voices to amplify it is rather unlikely to be heard at all, or say anything that is meaningful. Similarly, the EHC without its NMOs would be without its main purpose. To...
EHC Now! Nastassia Kisialeva joins EHC’s team
EHC Workshop on New Technologies in Haemophilia Care 2019
Medscape Offers Haemophilia Gene Therapy Education for Health Care Providers
After many years, gene therapy in patients with haemophilia has started to show promising results in alleviating symptoms and improving the disease phenotype. Medscape has launched a new education program for providers seeking to...
EHC Now! Have you ever heard of the “Stiff-Ankle Society”?
Apparently, they are very popular in Denmark and were broadly talked about in the Nordic meeting that took place from 15-17 November in Copenhagen, Denmark. Also, EHC Community Programmes Officer Fiona Brennan and recently-retired...
EHC Now! Patient education taken to a whole new level
THREE, TWO, ONE – LET IT RIP! Patient education taken to a whole new level! Pegasus special move – Storm Bringer!!! If you are a parent of a 9-year old, you surely have gone...