Evolution of Haemophilia Care in Europe: 10 years of the principles of care

The European principles of care in haemophilia marked their first decade in 2018. These guiding principles were the beginning of the European Haemophilia Consortium (EHC) review of countries’ adherence to these principles in 2009, 2012, 2015 and 2018.

In 2018, the EHC distributed a survey to EHC national member organisations in English and Russian to examine the implementation of the principles and how they have impacted the evolution of care in the last decade, as well as to identify remaining gaps and proposes future directions. The results of this study have been published in an open access article in the Orphanet Journal of Rare Diseases.

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