On June 19th 2018, the European Haemophilia Consortium (EHC) held its second Round Table of Stakeholders of the year at the European Parliament in Brussels. The event focused on Women and Rare Bleeding disorders and was kindly hosted by Member of the European Parliament (MEP) Jana Žitňanská (ECR, Slovakia) and attended by MEPs Mrs Nessa Childers (S&D, Ireland), Dr Miroslav Mikolášik (EPP, Slovakia), Dr Cristian Bușoi (EPP, Romania) and Mrs Norica Nicolai (ALDE, Romania).
The event gave the opportunity to the EHC to raise awareness about the issues faced by women who are affected by rare bleeding disorders. This is an often-overlooked topic due to the lack of awareness amongst both the general public and non-specialist health care professionals. The event also unveiled the first findings of the 2017 EHC Survey on Women and Rare Bleeding Disorders. Speakers included health care professionals and women living with a rare bleeding disorder and was attended by close to 50 participants.
Below, you can consult the agenda, speakers’ biographies, presentations and other documents provided during the Round Table. Pictures from the event are on our Facebook page.
- Round Table report
You can also find an article covering the event in the EHC NOW! section or by clicking here.
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