EHC is embarking on a new chapter as we announce a change in leadership.
As per mutual agreement between Luis Teixeira, our current CEO, and EHC, Luis will step down from his role and leave the EHC on May 14. The Steering Committee would like to express its sincere gratitude to Luis for his dedication and contributions during his time with the EHC. We wish Luis all the best in his future endeavours.
As we navigate this transition, we remain committed to upholding our values and delivering on our mission and objectives. With this purpose we are pleased to announce that EHC has appointed a new Chief Executive Officer, Olivia Romero Lux, former interim president of the EHC and present Steering Committee member, starting her tenure on April 1st. Olivia will terminate her position as a Steering Committee member on March 31st. Between April 1st and May 14th, Olivia and Luis will both operate as CEOs to ensure a smooth transition.
With a proven track record of dedication and experience, Olivia brings a wealth of expertise and leadership to our organisation. We are confident that her commitment to the current vision and strategic objectives as well as her innovative and balanced approach to challenges will guide EHC through our next phase of growth and development.
As we transition to new leadership, our commitment to delivering value to our stakeholders remains unwavering. We are excited about the possibilities that lie ahead and look forward to working together.
Miguel Crato, EHC President
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
