EHC is looking for a consultant for a new Think Tank project
The European Haemophilia Consortium (EHC; www.ehc.eu) is looking for an independent consultant to undertake project consultancy work supporting the EHC Think Tank.
Type of contract: One-year consultancy contract, renewable
Project start date: March 2021
Summary
The Consultant will be responsible for coordinating and implementing the EHC Think Tank’s external work.
Terms of Reference
The EHC Think Tank’s external work seeks to create a platform around which to host key, expert health care stakeholders in coming and working together as ‘change agents’ to tackle key priority areas and co-design trajectories of positive and long-term future change. This work is complementary and additional to the EHC’s ongoing advocacy activities. It focuses on a broader, more collective, ‘blue sky’ approach that targets long-term process change rather than short-term outcomes.
The Consultant will be required to:
- Drive and implement the Think Tank’s external work, including management of its roadmap and workstreams;
- Tailor-design, implement, and continually innovate the Think Tank’s methodologies, as needed;
- Communicate, liaise and coordinate with European and national patient organisations, healthcare providers, policy-makers, industry manufacturers and all other relevant stakeholders impacting the European health care system, as required by individual Think Tank work streams;
- Design, organise and facilitate individual workstream sessions as most relevant and appropriate to the needs of that stream, in a lead or support capacity, as appropriate;
- Help produce relevant communication materials, including workstream minutes, relevant outputs (e.g., monographs, scientific papers), articles, newsletters and /or materials, as needed;
- Produce relevant web and social media content, as needed;
- Participate in and/or speak at Think Tank, EHC and/or external meetings or events to promote and/or continuously improve the Think Tank’s work.
- Carry out any other relevant tasks as required by the CEO.
Required background, skills and expertise
- Master’s degree or equivalent level of proved expertise in health or related policy field.
- Ten or more years of proved engagement in public health and patient partnership work.
- Substantive expertise in the project- and stakeholder management required.
- Proved experience in designing, preparing and managing expert-level strategic meetings.
- Expert-level engagement with all of the following stakeholders:
- Patient organisations,
- Healthcare providers,
- National or European policymakers, and
- Industry representatives.
- Candidate must demonstrate strong and consistent diplomacy, facilitation, negotiation, strategic thinking, consensus-building, analytical reporting, program coordination, budget management and public speaking.
- Candidate must demonstrate high-level professionalism, discretion and commitment to high-quality work under pressure.
- Availability to travel in Europe and occasionally to provide services on weekends (post-COVID).
- Fluent written and verbal English, other European languages an asset.
Submission and deadline for proposals
Written proposals (in English) must be submitted to [email protected] by Friday, February 19, 2021.
These must include:
- Proposal letter outlining motivation and relevant expertise,
- Personal CV containing areas of training and previous engagements,
- Proposed consultancy fee (indicated in Euros and as day rate) excluding VAT,
- A shortlist of previous/current clients or three professional references with contact details.
Incomplete proposals will not be considered. Due to time constraints, the EHC will only respond to short-listed proposals.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
