The European Haemophilia Consortium (EHC) is looking for an experienced, analytical and passionate European public policy and communications officer to join its small, dynamic team of staff and volunteers.
Type of contract: Full-time, one-year employee contract, renewable
Location: Brussels, Belgium
Reporting to: CEO
Start date: September-November 2021
Remuneration: Commensurate with experience
Summary
This vacancy is for one out of the two Public Policy & Communications positions, who work jointly as a team. The ideal candidate will have some content background in public health, rare diseases, and civil societies’ role in shaping health policies and legislation. The ideal candidate will possess excellent attention to detail, proven organisational and project management skills, and the ability to communicate eloquently and flawlessly in English with a broad range of audiences in a compelling and captivating manner. They must also work flexibly and collaboratively within a close-knit team and patient community in cross-cutting ways.
Main duties and responsibilities
This Public Policy & Communications Officer will be mainly responsible for:
Public policy tasks
- Building, maintaining and supporting the EHC’s official group of Members of the European Parliament,
- Organising and implementing key public policy and awareness events such as those organised within the framework of the EHC Think Tank,
- Representing the EHC at, and reporting back from, key public policy events, as relevant and jointly with colleagues,
- Building and maintaining key contacts amongst policymakers and the media,
- Following relevant European policy and legislative developments, assessing their impact on the rare bleeding disorders community and suggesting appropriate actions,
- Carrying out any other public policy tasks as required.
Communication tasks
- Supporting all communications before, during and after EHC and external events,
- Producing and maintaining EHC websites and social media accounts,
- Producing both written and digital communication materials (e.g. articles, reports, videos),
- Proof-reading and materials produced by colleagues or volunteers,
- Conceiving and producing EHC stands/booths for conferences and events, and manning these,
- Managing the communications work of volunteers and external service providers,
- Producing press releases, press briefings and other materials, when necessary,
- Carrying out any other communications tasks as required.
Qualifications and requirements
- Minimum 7 years of work experience, ideally in the non-profit sector.
- Native or highly proficient English, working knowledge of other languages an asset (e.g., Russian).
- Higher university degree.
- Superior writing and editing skills.
- Excellent attention to detail.
- Excellent organisational skills.
- Strong project management skills.
- Strong computer skills, including experience with MS Office, Adobe, web- and video editing.
- Strong interpersonal and diplomacy skills.
- Able to show initiative, self-start, work under tight deadlines and deliver under high pressure.
- Able to work professionally with multiple cultures and professions, including patients, volunteers, doctors, external consultants and service providers.
- Able to work well virtually as well as face-to-face.
- Able to travel and work, including on weekends, for events in a post-pandemic scenario.
- Familiarity, or experience with, European institutions is an asset.
- Familiarity with haemophilia, rare bleeding disorders or other rare diseases is an asset.
Submitting Candidatures
Applications should be submitted to [email protected] by midnight on Sunday, August 15th 2021.
Applications should consist of all of the following:
- Letter of motivation,
- CV,
- Range of expected gross monthly remuneration,
- Telephone and email contacts for 3 references (these will be contacted before a first interview).
Please note that incomplete applications will not be considered.
Job opening_Public Policy & Communications Officer_2021We are grateful for all applications and thank all candidates in advance for their interest, time and motivation. Unfortunately, because we are a very small team with a heavy workload, we will only contact short-listed candidates. We thank you in advance for your interest and look forward to your application.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
