The European Haemophilia Consortium (EHC) is delighted to announce its newest project, the EHC Think Tank. This initiative aims to modernise the EHC advocacy activities by engaging with key opinion leaders and creating people-and-change-agent-driven solutions for the rare bleeding disorders community. The EHC Think Tank seeks to engage multiple healthcare stakeholder perspectives in co-designing trajectories of positive future change. In this way, the EHC external workstream will work with a long-term perspective and focus on processes rather than short-term campaigns and projects.

To lead this project, the EHC hired Think Tank Officer, Ms Naja Skouw-Rasmussen. A former EHC Steering Committee member (2015-2021), Naja brings to the EHC a wealth of experience gained from volunteering work at the national (Denmark) and international level.

Naja is a Danish national with a science background that she gained through academic training at the University of Copenhagen and the SOAS in London, UK.

EHC CEO Amanda Bok said: ‘By creating the Think Tank, we wish to revamp our advocacy work. We believe that to tackle the upcoming challenges in the rare bleeding disorders community, we will need to craft innovative solutions with the meaningful input and collaboration of all concerned stakeholders.‘ She continued: ‘Naja is a fantastic patient advocate with an impeccable track record of volunteer work at both the national and international level. She understands the needs of our community and has a great flair for out the box thinking. We are delighted that she decided to step down as Steering Committee member and join the operational side of the EHC.’

Naja’s joining the EHC leaves a vacant place on the EHC Steering Committee, who shall be voting for a replacement in the next few weeks.