Jamie O’Hara, UK Haemophilia Society; Hortensia de la Corte Rodriguez, Hospital Universitario La Paz, Madrid; Pier-Luigi Solimeno, University of Milan; Miguel Crato, EHC Steering Committee; Lotte Haverman, Amsterdam UMC; Nathalie Roussel, University of Antwerp; Paul McLaughlin, Royal Free London NHS Foundation Trust
Frank and open Q&A about alternative treatments, physical activity, opioids, physiotherapy; comparing various European models in pain management. As always, focus must be patient-centered and patient must be taken into account. Being paternal does not work.
Chronic pain occurs in over 50% of respondents from PROBE study when walking. The truth about pain in haemophilia: Results from the CHESS & PROBE studies w/ Jamie O’Hara, UK Haemophilia
Joint morbidity has significant impact on resource use. Avoiding it has substantial and dramatic impact. – Jamie O’Hara.
The brain interprets pain signals + the brain is plastic = barring real damage, the brain’s interpretation can be altered using physical activity (which reverses ascending & descending pathways). Good news:
@EHC_Haemophilia provides physical activity grants! (retweeted from Amanda Bok)
“Pain is a universal symptom of every condition & it’s management is an art” says Jamie O’Hara at
@EHC_Haemophilia RT on pain management before sharing pain data. (retweeted by Amanda Bok)
Nathalie Roussel beautifully sets the scene of
@EHC_Haemophilia RT on pain management and calls on all clinicians to use a broad biopsychosocial assessment plan with patients. (retweeted by Amanda Bok)
“Most of you think of haemophilia as a bleeding disorder with orthopaedic complications; I see haemophilia as an orthopaedic disorder with bleeding complications” says Luigi Solimeno at
@EHC_Haemophilia RT on pain management, discussing multiple treatment options. (retweeted from Amanda Bok)
Debunking painkiller myths at
@EHC_Haemophilia RT on pain management w/ Hortensia de la Corte Rodriguez.
Painkiller pharmacology is not easy & not well-studied in haemophilia, says Hortensia de la Corte Rodriguez at
@EHC_Haemophilia RT on pain management, walking us through general WHO analgesic ladder instead. (retweeted from Amanda Bok)
Physiotherapist Paul McLaughlin nails it: best evidence: listen, communicate, assess – physical, appropriate outcome measures, educate, motivate, support, facilitate. Patient-centered! Chronic ongoing knee pain? Another x-ray will not help that.
The vicious cycle of haemophilia – the role of the physiotherapist in pain management in haemophilia w/ Paul McLaughlin, Royal Free London NHS Foundation Trust
Focus has been on stopping the bleeding and not so much on stopping the pain. – Paul McLaughlin
Only 30% of patients use physical activity to deal with pain, reports Paul McLaughlin, noting that’s almost as many people as use ice or prayer! Why aren’t more people using physio?! From
@EHC_Haemophilia RT on pain
Respect, candour, accountability, and the primacy of the patient’s lived experience – as usual a wonderfully down-to-earth, pragmatic & empathic talk by Paul McLaughlin at
@EHC_Haemophilia RT on pain management. (retweeted by Amanda Bok)
The pain circle w/ Lotte Haverman, Amsterdam UMC. When to use psychological interventions to manage pain? Dutch model takes into account doctor, social worker, psychologist, physio, nurse.
Holistic and practical exercises for relaxation: foursquare breathing, guided imagery, self-talk, hypnosis, mindful mediation.
Lotte Haverman takes us through psychological aspects & cognitive behavioural therapy approaches to acute & chronic pain at
@EHC_Haemophilia RT on pain management. (retweeted from Amanda Bok)