In this issue:
President and CEO Report
pg 03 – President and CEO Report
EHC News
pg 6 – Comprehensive care for bleeding disorders: An overview of comprehensive care services and professionals
pg 11 – EHC holds Round Table on factor concentrate-related inhibitor formation in haemophilia A
pg 13 – Meet Aislin Ryan, EAHAD – EHC Project Consultant
pg 15 – EHC revamps its website
pg 19 – EHC conference: Is your country ready to welcome the European bleeding disorders community?
pg 20 – EHC 2015: Come and meet us in Belgrade!
pg 22 – Pilot Leadership Conference: Building capacity and strengthening European intergenerational dialogue amongst EHC members
pg 23 – French Women’s Committee to organise workshop for women at EHC Conference
NMO News
pg 25 – NMO Profile: Suomen Hemofiliayhdistys (SHY) – EHC Finnish National Member Organisation
pg 27 – Italy elects new President: Interview with Cristina Cassone
pg 29 – Portuguese First National Congress: Leira, 27-29 November 2014
pg 30 – Rise like a phoenix
pg 31 – Newly Diagnosed Weekend
pg 33 – The All Party Parliamentary Group on Haemophilia and Contaminated Blood (APPG)
pg 36 – Special St. Camillus Prize for Bogdan Gajewski, President of the Polish Hemophilia Society
Feature Articles
pg 37 – Veggies for treatment of haemophilia
pg 39 – Highlights from the International Plasma Protein Congress 2015
pg 41 – Rare Disease Day celebration in Brussels
pg 44 – Building Value and Mutual Benefit through EFPIA’s Patient Organisation Code
Announcements
pg 46 – EHC 2015 Calendar of Events
pg 46 – Other Events
pg 48 – EHC Conference 2015 – Preliminary Programme