
The European Haemophilia Consortium (EHC) has published its December 2016 Newsletter.
In this issue:
Pg 02: President and CEO Report
EHC News
Pg 05: Comprehensive care in haemophilia: Hepatology
Pg 08: EHC Annual Conference
Pg 11: EHC Workshop on Tenders and Procurement
Pg 13: EHC Workshop on New Technologies in Haemophilia Care
Pg 16: EHC Inhibitor Summit
Pg 18: Round-up of EHC Round Tables of Stakeholders
Pg 20: Meet the newly elected EHC Steering Committee
Pg 22: Meet the EHC Russian interpreters: Olga Miniuk and Julia Krivkina
NMO News
Pg 25: NMO profile: Macedonia
Pg 28: News from Albania: Improving treatment through international cooperation
Pg 29: Bloodrelatives: The end of a journey leading to the beginning of an adventure
Pg 31: International Basketball Camp for People with Haemophilia 2016
Pg 35: German NMO elects a new president: Meet Stefanie Oestreicher
Pg 36: Changes within the EHC Swedish National Member Organisation
Feature Articles
Pg 39: Researcher spotlight: Dr Karen Vanhoorelbeke
Pg 41: Results of patient survey on EHL expectations in the DACH region
News from our corporate partners
Pg 47: Novo Nordisk
Pg 49: We are Roche
Pg 51: Shire
Pg 52: Third EHC Youth Debate (Sobi)
Pg 54: Haemophilia Lead (Bayer)
Pg 55: CSL Behring’s workshop at the EHC Annual Conference
Pg 56: Changing the conversation (Grifols)
Pg 57: Calendar of events
Announcements
Pg 58: Invitation to contribute to survey on chronic pain and adherence
Pg 59: New book on ‘Sexuality and Bleeding disorders’