
The European Haemophilia Consortium has published its May 2017 Newsletter.
In this issue:
Pg 03: President and CEO Report
Pg 05: EHC News
Pg 05: Comprehensive Care in Haemophilia: Inhibitor management
Pg 08: EHC Round Table on Clinical Trials in Haemophilia A
Pg 12: Tools to pursue dreams: Youth Leadership Workshop
Pg 13: From youth to senior: not a matter of age
Pg 14: World Haemophilia Day 2017
Pg 16: First European Inhibitor Summit
Pg 17: Experience of a parent at the Inhibitor Summit
Pg 18: EHC welcomes new staff member Declan Noone
Pg 20: New working group on women in the bleeding disorders community
Pg 22: In loving memory — An appreciation of Gordon Clarke and Edmond Secq
Pg 24: NMO News
Pg 24: Meet Guus Wijfjes, new president of the Dutch NMO
Pg 26: HemoNED, the Dutch haemophilia patient registry
Pg 28: Ascending Mount Hoverla in spite of haemophilia
Pg 36: Summer camp for children with haemophilia in the Ukrainian Carpathians
Pg 37: First APH meeting of people with haemophilia and inhibitors
Pg 39: Feature Articles
Pg 39: Researcher spotlight: Professor Roger Schutgens
Pg 42: The Lighthouse Project
Pg 44: My experience with desmopressin
Pg 45: No stone unturned at the 10th EAHAD Annual Congress
Pg 47: Second EURORDIS Multi-Stakeholder Symposium
Pg 49: Announcements
Pg 49: EHC calendar of events
Pg 49: Other events