The European Haemophilia Consortium (EHC) held on 30 Septmber – 4 October its pilot Leadership Conference, Annual Conference and Annual General Meeting (AGM) in Belgrade, Serbia.
The pilot Leadership Conference brought together some 70 representatives from 38 EHC National Member Organisations (NMO) to build capacity and discuss common issues such as NMO funding, organisational matters and tenders and procurement. This was an opportunity for EHC NMO to meet, share experiences and learn from each other.
The event continued with the 28th EHC Annual Conference where over 300 participants from 42 countries attended the event and took part in a mix of scientific sessions, workshops and industry simposia. Amongst the scientific topics discussed at the Annual Conference were inhibitors, women and bleeding disorders, ageing and cardio-vascular diseases, longer-acting products, gene therapy, complications in haemophilia and haemophilia care in Serbia. The EHC Also held two workshops on ‘Developing a European Inhibitor Network’ and ‘Women in the bleeding disorder community.’ This event had the highest attendance rate yet for any EHC Conference. Participants who attended this event can provide their feedback by completing this online survey.
Finally, on Sunday, EHC NMOs took part in their AGM to discuss EHC strategic matters. EHC Members re-elected Mr Brian O’Mahony (Irish NMO) as their president for the next four years (2016-2020) and decided that the EHC 2017 Annual Conference will be held in Vilnius, Lithuania.