The EHC Virtual Leadership Conference 2021 will take place on 24-25-26 June 2021!
The three online sessions will thematically focus on different aspects of post-pandemic life of the bleeding disorder community!
– On Thursday, 24 June, from 16:00-18:30 we will have a look into the future of treatment and the work of the NMOs;
– On Friday, 25 June, from 17:00-19:30 we will explore the psychology of the online engagement;
– On Saturday, 26 June, from 10:00-13:00 we will practice speaking with one voice.
Around these three themes, we will have a variety of things prepared for you – expert lectures, workshops, fun icebreakers, as well as resource gallery with the useful materials and highlights of the work that you – our NMOS – are doing!
As always, this will be the place where the different actors from the NMOs – the senior NMO leaders, young leaders and staff – can exchange and work together!
For the REGISTRATION please contact your NMO! The registration will close on 10 June 2021.
The draft programme can be consulted here below!
***
- Hidden by the pandemic: What is something that your NMO excels in? Something you have achieved during the pandemic that you are proud of? Tell us!
- Work with your members in the time of pandemic: What have been your challenges and solutions to them?
- The boldest change ever: What is the boldest change ever made within your NMO or by your NMO? What was done and how?
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
