Welcome
The European Haemophilia Consortium (EHC) is delighted to welcome you to its 2022 Conference. This event will occur at the Scandic Copenhagen Hotel in Copenhagen, Denmark and online from 7 to 9 October 2022.
Following two years of the global pandemic, we are delighted to welcome you again to a face-to-face event and offer you an exciting programme looking at diverse issues for our community. We hope you will enjoy it!
Access the EHC 2022 Conference Platform
EHC 2022 Conference Programme
You can consult the full programme here.
On Friday, 7 October 2022, scientific sessions will start at 8.30 and finish at 17.15 hrs CEST.
On Saturday, 8 October 2022, scientific sessions will start at 8.30 and finish at 17.15 hrs CEST.
On Sunday, 9 October 2022, scientific sessions will start at 8.30 hrs and finish at 12.45 hrs CEST.
Sessions and symposia will also be streamed online.
You can consult the full conference programme here.
On Friday, 7 October, there will be the following symposia:
- 12.45-13.30 hrs – Living with a rare bleeding disorder: Overcoming mental and physical pain – sponsored by Takeda
- 13.45-14.30 hrs – Informed decision-making: Jointly balancing the needs for today and the future – sponsored by Sobi
On Saturday, 8 October, there will be the following symposia:
- 12.45-13.30 hrs – Ageing with a bleeding disorder – sponsored by BioMarin
- 13.45-14.30 hrs – Expanding Patient Access to Innovative Therapies: Health system challenges for new innovative therapies and learnings on novel methods to support patient access – sponsored by Pfizer
On Sunday, 9 October, there will be the following symposia:
- 10.00-10.45 hrs – Psycho-social learnings from COVID – sponsored by CSL Behring
- 11.15-12.00 hrs – Advancing treatment and care for all rare bleeding disorders – sponsored by Novo Nordisk
The EHC will hold its 2022 General Assembly on Friday, 7 October, from 17.30 to 19.30 hrs CET.
Delegates can meet and exchange in between conference sessions and symposia. Virtual participants can exchange with all delegates via the conference app.
On Saturday, 8 October, delegates can attend the Conference dinner at the Marriott Hotel Copenhagen pending purchasing an additional dinner ticket (see below).
European Rare and Inhibitor Network (ERIN) training session “Building an Expertise – Further Steps”
When: 6 October 2022 from 9:00 – 17:00
Where: Scandic Hotel, Copenhagen, Denmark
For whom: One person with inhibitors (or their caregiver), one or more people with a very rare bleeding disorder and one senior NMO leader per NMO.
More information and registration: Kristine Jansone (kristine.jansone[at]ehc.eu)
Programme: The draft programme can be found here.
VWD Platform Community Workshop: “From Guidelines and Principles to Reality”
When: 6 October 2022 from 10:00 – 17:15
Where: Scandic Copenhagen Hotel, Copenhagen, Denmark
For whom: NMOs can nominate up to 2 people: one person with VWD (or their caregiver) and one senior NMO leader
More information and registration: Fiona Brennan (fiona.brennan[at]ehc.eu)
Programme: The draft programme can be found here.
Nurses Workshop: Sexual Health & Intimacy: How to have the conversation with patients
When: 7 October 2022 from 17:30 – 19:30
Where: Scandic Copenhagen Hotel, Copenhagen, Denmark
For whom: Invited NMOs can nominate up to 2 people nurses from their national Haemophilia Treatment Centre
More information and registration: Fiona Brennan (fiona.brennan[at]ehc.eu)
Programme: The draft programme can be found here.
EHC Committee & Working Group Networking Event
When: 6 October 2022 from 18:00 – 19:30
Where: Copenhagen, Denmark
For whom: Invited members of EHC Committees & Working Groups
Registrations: Register online here.
More information and registration: Laura Savini (laura.savini[at]ehc.eu)
Programme: The draft programme can be found here.
Follow the EHC Conference 2022 on the EHC Conference App
Whether you are an onsite or online delegate, you can consult the programme, speakers’ bios, delegates’ profiles, and more on the EHC Events App. The app will go live a few days before the Conference. In the app, you can also view the EHC Zone, the sponsors’ zone, podcasts and a resource centre.
Committees
Conference Organising Committee
- Jacob Bech Andersen, President, Danish NMO
- Amanda Bok, EHC CEO,
- Declan Noone, EHC President,
- Minette van der Ven, EHC Vice-President Finance
Scientific Committee
- Prof Jan Blátny, Brno University,
- Mrs Maj Friberg Birkendal, Rigshospitalet
- Dr Eva Funding, Copenhagen University Hospital,
- Dr Lone Hvitfeld Poulsen, Aarhus University,
- Dr Radaslaw Kaczmarek, Indiana University School of Medicine,
- Prof Michael Makris, University of Sheffield,
- Prof Johannes Oldenburg, Bonn University,
- Prof Flora Peyvandi, University of Milan.
Conference secretariat
For further information on registration, accommodation and general enquiries, please contact:
EHC 2022
c/o Conference Organisers Limited
20C The Courtyard
Castle Street, Dalkey
Co Dublin, Ireland
e: [email protected]
Registrations
The EHC Conference registrations are now open!
| Delegate registrations (on-site attendance) | Early fee | Late fee | Onsite fee |
| for fees received | Before 17 July | Before 4 September | After 4 September |
| Industry/ commercial registration | €450 | €550 | €650 |
| Medical Registration | €250 | €350 | €450 |
| EHC NMO Registration | €200 | €225 | €250 |
| Patient Registration – non-EHC member | €200 | €225 | €250 |
Delegate (onsite) registration fee includes:
- Entrance to the Conference Sessions,
- Conference App access,
- Lunch on Friday, Saturday and Sunday, and
- Tea/coffee during official breaks.
Dinner ticket
Delegates can purchase a dinner ticket to access the Saturday dinner (8 October). The price of the ticket is €100.
The EHC will waive dinner ticket fees for EHC NMO- and patient registration holders.
| Online Registration | Online fee |
| Industry/ Commercial registration | €75 |
| Medical registration | €50 |
| EHC NMO registration | €25 |
| Patient registration | €25 |
Online Registration Fee includes:
- Access to the Conference Sessions, and
- Conference App access.
Accommodation in the Conference venue
The EHC will host its 2022 Conference at the Scandic Copenhagen Hotel. The EHC has negotiated the following accommodation rates for its delegates (pending availability):
- Hotel bedroom including breakfast (single occupancy), €170 per night,
- Hotel bedroom including breakfast (double occupancy), €200 per night.
Cancellation policy
- An administration fee of 30% will apply to registration and accommodation cancellations received on/before 17 July 2022.
- No refunds can be made for any cancellations received after 17 July 2022.
- Registrants may transfer their registration to a colleague, and an administration fee of €50 will apply.
- All refunds due will be processed after the conference. Refunds paid are less any bank or credit card charges.
- The conference secretariat must receive cancellations in writing by the dates specified. Credit cannot be given for unused service, unattended events or early termination of attendance.
- Payment can be made online via credit card – Visa and Mastercard accepted.
- Payment can also be made by bank transfer – account details are on the registration system.
Practical information
Visa requirements
If you are an EU citizen, you must either present a passport or an ID card valid for the duration of your stay to enter Denmark for tourist visits of up to three months.
Citizens of other countries must have valid passports. Some non-EU citizens are required to produce a visa. Please contact your travel agent or the nearest Danish diplomatic post for further information.
For more information, please visit the website of the Ministry of Foreign Affairs of Denmark.
Special regulations apply to specific groups of people:
- Denmark has concluded a bilateral visa-fac. Limitation agreements with several countries: Montenegro, Albania, Ukraine, Ukraine, Bosnia and Herzegovina, Serbia, Russia, and Moldova. Read more about the visa-facilitation agreements. Since March 2022, the Danish government has suspended several provisions in the visa agreement between Russia and Denmark.
- People holding certain residence permits in another Schengen country do not need a visa. Read more about residence permits issued by another Schengen country.
Please note that it can take up to eight weeks to process a Visa Application, and early application is recommended.
Please also note that the Organising Committee, or its agents, cannot accept any responsibility in connection with Visa Applications. The standard cancellation policy for registration fees and hotel deposits will apply if a delegate is unable to attend the conference due to late submission of their visa application and/or rejection of the same.
Please note that the Conference Organisers will provide supporting documentation to apply for a visa once the registration process is completed and the registration fees are received.
Travel
By Plane
Copenhagen Airport is the leading international airport serving Copenhagen. It is the largest airport in the Nordic countries and one of the oldest international airports in Europe. It is the third-busiest airport in Northern Europe and the busiest for international travel in Scandinavia, welcoming direct flights from London, Oslo, Stockholm, Amsterdam, Paris, Helsinki, Frankfurt, Berlin, Brussels, Istanbul, Reykjavik-Keflavik, Rome, Munich, Zürich, Barcelona, Düsseldorf, Milan, Málaga, Dublin, Vienna, Manchester, Stavanger, Geneva, Madrid and more.
By Bus & Train
Copenhagen Central Station is located in the heart of the city. It is a gateway to all public transportation in and out of Copenhagen.
Here, you will find buses, taxis, local S-trains, and regional trains that will take you to North Zealand, other areas of Denmark, Sweden, and most of Europe – and the airport.
Copenhagen Central Station is home to the Danish Public Transport Corporation DSB’s travel agency, a post office, supermarket, bakery, eateries, shopping centre, baby changing facilities, bathrooms, showers, luggage storage and a lost-and-found office.
From Copenhagen Airport
Find the quickest way to transfer from Copenhagen to the city centre.
COVID-19 measures
To learn about the latest COVID-19 measures in Denmark and COVID-19-related requirements to enter the country, please visit Re-open EU.
Treatment centre
Please find the details of the nearest Treatment Centre below:
Hæmofilicenter Rigshospitalet
Department of Haematology
Afsnit 2084
Entrance 2, 8. floor
Inge Lehmanns vej 7
2100 København Ø
DK – 2100 Copenhagen
Contact:
- From 8.30am-2pm: (+45) 35 45 98 68
- From 3pm-8am: (+45) 35 45 11 34
- In case of emergency, please call 112
Directions to this Treatment Centre are available here.
General information
Please visit this link for some useful information and advice when planning your trip and to help you make the most of your stay in Copenhagen – check out https://www.visitcopenhagen.com/
Currency
The Danish krone is the official currency of Denmark. The currency sign is “kr.” and the ISO code is “DKK”. You can check the current currency rates on this website.
Foreign currencies can be easily exchanged in banks. ATMs can be found in all parts of the city. Cash withdrawals may be made using your credit/debit card. The logos of accepted cards are shown beside the machine. Most internationally recognised bank credit cards are accepted and widely used in all hotels, restaurants and shopping malls where such methods of payment are indicated.
Electricity
In Denmark, the power sockets are a standard voltage of 230V with a frequency of 50Hz.
Country Code and Important Telephone Numbers
- Country Code: +45
- Emergency Services:
- Call (+45) 112 for life-threatening emergencies and ask for the police, fire department, or ambulance service.
- Call (+45) 1813 for injuries or sudden illness and speak to a nurse or doctor, or go to a hospital emergency department.
- Call (+45) 114 for police, when it is not an emergency.
Climate
The average weather in October in Copenhagen Denmark is from 14°C to 10°C, rarely falling below 6°C or exceeding 17°F.
Insurance
The Conference Organising Committee, or its agents, will not be responsible for any medical expenses, loss, damages or accidents during the Event. We would in particular draw your attention to the cancellation policy in respect of registration fees and accommodation. In the event that, for whatever reason, the Conference has to be cancelled or postponed, the Organising Committee, and/or its agents, will be responsible only for the refund of monies received. We recommend that delegates insure themselves for medical and cancellation charges.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
