The European Haemophilia Consortium (EHC) and Društvo hemofiličara Hrvatske welcome you to the 2023 EHC Conference.
EHC 2023 Conference Programme
Detailed information on the symposia topics and sponsors is coming soon!
Friday, 6 October 2023 from 17.15 to 19.30 hrs CET
The EHC 2023 Annual General Assembly (AGA) will take place on Friday, 6 October 2023, from 17.15 to 19.30 hrs CET. The EHC AGA is accessible to NMO members and patient representatives only. The AGA will be in English with live Russian interpretation. Remote Russian sound streaming will be provided for those unable to join us at the event.
Further details on the EHC AGA will be shared via direct mailing to EHC NMOs. For additional information on the EHC AGA, you can contact Saskia Pfeyffer.
The EHC 2023 Conference will be a face-to-face event only.
Audio streaming of live Russian interpretation of the Conference will be available via the EHC Conference App for those unable to travel to Zagreb.
Details on pre-Conference events will be available soon!
Organising Committees
Conference Organising Committee
- Manon Degenaar-Dujardin, EHC, Vice President of Finance,
- Marko Marinić, EHC Croatian NMO, President,
- Declan Noone, EHC, President,
- Ivan Paclik, EHC Croatian NMO, Board Member,
- Laura Savini, EHC, Advocacy Lead,
- Naja Skouw-Rasmussen, EHC, Innovation Lead, and
- Kruno Sokol, EHC Croatian NMO, Board Member.
Conference Scientific Committee
- Prof Ernest Bilić, University Hospital Centre Zagreb, Croatia,
- Prof Ana Boban, University Hospital Centre Zagreb, Croatia,
- Prof Mike Makris, EHC Medical Advisory Group,
- Marko Marinić, EHC Croatian NMO, President,
- Declan Noone, EHC, President, and
- Prof Flora Peyvandi, EHC Medical Advisory Group.
Conference Secretariat
For further information on registration, accommodation and general enquiries, please contact:
EHC 2023
c/o Conference Organisers Limited
20C The Courtyard
Castle Street, Dalkey
Co Dublin, Ireland
e: events@conferenceorganisers.ie
Registrations
The EHC 2023 Conference registrations are now open!
Delegate registration fees include the following:
- Entrance to the Conference sessions,
- Conference App access,
- Lunch on Friday, Saturday and Sunday, and
- Tea, coffee and refreshments during official breaks.
Dinner ticket
Delegates can purchase a dinner ticket to access the Saturday dinner (7 October).
The price of the ticket is €100.
The EHC will waive dinner ticket fees for EHC NMO and patient registration holders.
Accommodation and Conference Venue
The EHC will host its 2023 Conference at the Westin Hotel Zagreb. The EHC has negotiated the following accommodation rates for its delegates (pending availability):
- Hotel bedroom including breakfast (single occupancy), €180 per night,
- Hotel bedroom including breakfast (double occupancy), €190 per night.
Cancellation policy
- An administration fee of 30% will apply to registrations and accommodation cancellations received before 17 July 2023.
- No refunds can be made for any cancellation received after 17 July 2023.
- Registrants may transfer their registration to a colleague, and an administration fee of €50 will apply.
- All refunds due will be processed after the conference. Refunds paid are less any bank or credit card charges.
- The conference secretariat must receive cancellations in writing by the dates specified. Credit cannot be given for unused service, unattended events or early termination of attendance.
- Payment can be made online via credit card – Visa and Mastercard accepted.
- Payment can also be made by bank transfer – account details are on the registration system.
Travel information
Visa requirements
If you are an EU citizen, you must either present a passport or an ID card valid for your stay to enter Croatia for up to three months of tourist visits.
Citizens of other countries must have valid passports. Some non-EU citizens are required to produce a visa. Please get in touch with your travel agent or the nearest Croatian diplomatic post for further information.
For more information, please visit the website of the Ministry of Foreign and European Affairs in the Republic of Croatia.
IMPORTANT NOTICE
NOTICE ON FULL APPLICATION OF THE SCHENGEN ACQUIS IN THE REPUBLIC OF CROATIA AS OF 1 JANUARY 2023
As of 1 January 2023, the Schengen acquis is fully applied in Croatia as a Schengen area Member State.
The visa regime of the Republic of Croatia is part of the EU acquis.
As of 1 January 2023, Schengen visas (A and C) and long-term national visas (visa type D) are issued in Croatian diplomatic missions and consular offices.
Please find more information about visa requirements for your country via the link.
Please note that processing a Visa Application can take up to eight weeks, and early application is recommended.
Please also note that the Organising Committee, or its agents, cannot accept any responsibility concerning Visa Applications. The standard cancellation policy for registration fees and hotel deposits will apply if a delegate cannot attend the conference due to late submission of their visa application and/or rejection.
Please note that the Conference Organisers will provide supporting documentation to apply for a visa once the registration process is completed and the registration fees are received.
Travel – Getting to Zagreb
By Plane
Franjo Tuđman Airport (or Pleso Airport) is the country’s largest airport and is the main hub for Croatia Airlines, the national flag carrier responsible for about half of the number of passengers at the airport. Zagreb Airport is located south-east of the capital, welcoming direct flights from Frankfurt, Vienna, Split, Munich, Amsterdam, Paris, Sarajevo, Zurich, Istanbul, Belgrade, Brussels, Skopje, London, Warsaw, Copenhagen, Milan, Dubai, Dublin, Helsinki, Zadar, Stuttgart, Sofia, Athens, Malaga, Lisbon, Madrid, Bratislava, Malmo, and more.
By Bus & Train
Zagreb’s main station is also the largest station in Croatia as a whole and forms the primary hub of Croatia’s railway network. Located 1km south of the city’s main square, it runs direct services to major European cities such as Vienna (6 hours), Budapest, Zurich, Munich, Salzburg, Ljubljana, Sarajevo and Belgrade, as well as domestic services to all major towns (except Dubrovnik). Hrvatske željeznice (Croatian Railways) are the main provider of rail services from the station.
The bus station in Zagreb offers fast and safe transportation to all destinations in Croatia as well as to many bigger European cities.
From Zagreb Airport
There is a bus link between the main airport (Zračna luka) and the main bus station (Autobusni kolodvor) in Zagreb. From the bus station in downtown Zagreb, you can connect to the city’s trams, which have a major terminal just down the street. The journey from the airport to the main bus station should take around 25 minutes. The bus leaves the airport every thirty minutes between 8:00 am-8:00 pm. In the hours between these, there is a bus leaving for Zagreb bus station every time a Croatia Airlines plane arrives. Additionally, there are buses run by Croatia Airlines/Eurolines.
COVID -19 Measures
To learn about the latest COVID-19 measures in Croatia and COVID-19-related requirements to enter the country, please visit Re-open EU.
Nearest treatment centre for Rare Bleeding Disorders
Please find the details of the nearest Treatment Centre below:
University Hospital Centre Zagreb
Clinical Haematology Department
KBC Zagreb Rebro, Kišpatićeva 12, 10 000 Zagreb
Contact:
- +385 1 2376 340,
- In case of an emergency, please call 112
Directions to this Treatment Centre from the Conference Hotel are available here.
If you are an EU national, please do not forget to bring with you your European Health Insurance Card.
General Information
Please visit this link for useful information and advice when planning your trip and to help you make the most of your stay in Zagreb.
Climate
The average daytime temperature in Zagreb in October lies at 16.0°C (60.8°F). The average minimum temperature goes down to around 6.0°C (42.8°F) (often the minimum temperature is noted at night).
Rainfall during October is moderate with an average of 83mm (3.3 inches). There are generally around 11 rainy days. The sun will show itself now and again, with 130 hours of sunshine during the entire month.
Country Code and Important Telephone Numbers
- Country Code: +385
- Emergency Services:
- 192 Police
- 193 Fire department
- 194 Medical emergency
Currency
The Euro is the official currency of Croatia. You can check the current currency rates on this website.
Foreign currencies can be easily exchanged in banks. ATMs can be found in all parts of the city. Cash withdrawals may be made using your credit/debit card. The logos of accepted cards are shown beside the machine. Most internationally recognised bank credit cards are accepted and widely used in all hotels, restaurants and shopping malls where such payment methods are indicated.
Electricity
In Croatia, the power sockets are a standard voltage of 220V with a frequency of 50Hz.
Insurance
The Conference Organising Committee, or its agents, will not be responsible for any medical expenses, loss, damages or accidents during the Event. We would in particular draw your attention to the cancellation policy in respect of registration fees and accommodation. In the event that, for whatever reason, the Conference has to be cancelled or postponed, the Organising Committee and/or its agents will be responsible only for the refund of monies received. We recommend that delegates insure themselves for medical and cancellation charges.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
