The European Haemophilia Consortium (EHC) and Društvo hemofiličara Hrvatske welcome you to the 2023 EHC Conference. 

EHC 2023 Conference Programme

Friday, 6 October

12.35-13.20 – Novo Nordisk Symposium: Advancing Care in Haemophilia: The Role of Treatment Individualisation and Shared Decision-Making

13.25-14.10 – Sobi Symposium: What is quality for patients (Working Title)

 

Saturday, 7 October

13.05-13.50 – Roche Symposium: Current Challenges and Future Opportunities for People with Non-Severe people with bleeding disorders

13.55-14.40 – Sanofi Symposium: Managing haemophilia throughout life stages

 

Sunday, 8 October

10.20-11.05 – BioMarin Symposium: Supporting Patients across Gene Therapy Points of Care

11.35-12.20 – CSL Behring Symposium: Beyond the numbers: factor in the phenotype – von Willebrand diagnosis journey

Friday, 6 October 2023 from 17.15 to 19.30 hrs CET

The EHC 2023 Annual General Assembly (AGA) will take place on Friday, 6 October 2023, from 17.15 to 19.30 hrs CET. The EHC AGA is accessible to NMO members and patient representatives only. The AGA will be in English with live Russian interpretation. Remote Russian sound streaming will be provided for those unable to join us at the event.

Further details on the EHC AGA will be shared via direct mailing to EHC NMOs. For additional information on the EHC AGA, you can contact Saskia Pfeyffer.

The EHC 2023 Conference will be a face-to-face event only.

The Conference will have live Russian and Croatian interpretations.

Audio streaming of live Russian interpretation of the Conference will be available via the EHC Conference App for those unable to travel to Zagreb. 

Thursday 5 October 2023, the Westin Hotel, Zagreb, Croatia

EHC Volunteers Mixer

On Thursday, 5 October, EHC volunteers (nominated volunteers on EHC Committees) are invited to join an event from 17.00 to 19.00 hrs to meet with peers and exchange on committee activities. For more information, please reach out to Kristine Jansone.

Saturday 7 October 2023, the Westin Hotel, Zagreb, Croatia

WFH Membership Meeting

The World Federation of Hemophilia (WFH) invites its members to join them for a breakfast meeting on Saturday, 7 October 2023, from 8.00 to 8.45 hrs. The meeting is open to all WFH members. For more information, please contact your WFH contact person for further details.

Sunday 8 October 2023, the Westin Hotel, Zagreb, Croatia

PROBE Meeting

The Patient-Reported Outcomes, Burdens and Experiences (PROBE) project coordinators will present you with the latest updates on PROBE. This meeting will take place on Sunday, 8 October, from 08.00 to 08.50 hrs, and it is open to all.

Download the EHC 2023 Conference app (iOs and Android) by scanning the QR code below.

Registered participants will receive their login details by email from the Conference Organisers.

 

Organising Committees

Conference Organising Committee

  • Manon Degenaar-Dujardin, EHC, Vice President of Finance,
  • Marko Marinić, EHC Croatian NMO, President,
  • Declan Noone, EHC, President,
  • Ivan Paclik, EHC Croatian NMO, Board Member,
  • Laura Savini, EHC, Advocacy Lead,
  • Naja Skouw-Rasmussen, EHC, Innovation Lead, and
  • Kruno Sokol, EHC Croatian NMO, Board Member.

Conference Scientific Committee

  • Prof Ernest Bilić, University Hospital Centre Zagreb, Croatia,
  • Prof Ana Boban, University Hospital Centre Zagreb, Croatia,
  • Prof Mike Makris, EHC Medical Advisory Group, 
  • Dr Marko Marinić, PhD, EHC Croatian NMO, President, and Institute of Social Sciences Ivo Pilar, Zagreb, Croatia.
  • Declan Noone, EHC, President, and
  • Prof Flora Peyvandi, EHC Medical Advisory Group.

Conference Secretariat

For further information on registration, accommodation and general enquiries, please contact:

EHC 2023
c/o Conference Organisers Limited
20C The Courtyard
Castle Street, Dalkey
Co Dublin, Ireland
e: events@conferenceorganisers.ie

Registrations

The EHC 2023 Conference has reached full capacity.
For registration please contact the Conference Organisers at events@conferenceorganisers.ie

Following national regulations, EHC will apply a 25% VAT rate to registration fees. 

Delegate registration fees include the following:

  • Entrance to the Conference sessions, 
  • Conference App access, 
  • Lunch on Friday, Saturday and Sunday, and
  • Tea, coffee and refreshments during official breaks. 

Dinner ticket

Delegates can purchase a dinner ticket to access the Saturday dinner (7 October).

The price of the ticket is €100.

The EHC will waive dinner ticket fees for EHC NMO and patient registration holders.

Accommodation and Conference Venue

The EHC will host its 2023 Conference at the Westin Hotel Zagreb. The EHC has negotiated the following accommodation rates for its delegates (pending availability):

  • Hotel bedroom including breakfast (single occupancy), €180 per night,
  • Hotel bedroom including breakfast (double occupancy), €190 per night. 

Cancellation policy

  • An administration fee of 30% will apply to registrations and accommodation cancellations received before 17 July 2023.
  • No refunds can be made for any cancellation received after 17 July 2023.
  • Registrants may transfer their registration to a colleague, and an administration fee of €50 will apply.
  • All refunds due will be processed after the conference. Refunds paid are less any bank or credit card charges.
  • The conference secretariat must receive cancellations in writing by the dates specified. Credit cannot be given for unused service, unattended events or early termination of attendance.
  • Payment can be made online via credit card – Visa and Mastercard accepted.
  • Payment can also be made by bank transfer – account details are on the registration system.

Travel information

Visa requirements

If you are an EU citizen, you must either present a passport or an ID card valid for your stay to enter Croatia for up to three months of tourist visits.

Citizens of other countries must have valid passports. Some non-EU citizens are required to produce a visa. Please get in touch with your travel agent or the nearest Croatian diplomatic post for further information.

For more information, please visit the website of the Ministry of Foreign and European Affairs in the Republic of Croatia.

IMPORTANT NOTICE

NOTICE ON FULL APPLICATION OF THE SCHENGEN ACQUIS IN THE REPUBLIC OF CROATIA AS OF 1 JANUARY 2023

As of 1 January 2023, the Schengen acquis is fully applied in Croatia as a Schengen area Member State.

The visa regime of the Republic of Croatia is part of the EU acquis.

As of 1 January 2023, Schengen visas (A and C) and long-term national visas (visa type D) are issued in Croatian diplomatic missions and consular offices.

Please find more information about visa requirements for your country via the link.

Please note that processing a Visa Application can take up to eight weeks, and early application is recommended.

Please also note that the Organising Committee, or its agents, cannot accept any responsibility concerning Visa Applications. The standard cancellation policy for registration fees and hotel deposits will apply if a delegate cannot attend the conference due to late submission of their visa application and/or rejection.

Please note that the Conference Organisers will provide supporting documentation to apply for a visa once the registration process is completed and the registration fees are received. 

Travel – Getting to Zagreb

By Plane

Franjo Tuđman Airport (or Pleso Airport) is the country’s largest airport and is the main hub for Croatia Airlines, the national flag carrier responsible for about half of the number of passengers at the airport. Zagreb Airport is located south-east of the capital, welcoming direct flights from Frankfurt, Vienna, Split, Munich, Amsterdam, Paris, Sarajevo, Zurich, Istanbul, Belgrade, Brussels, Skopje, London, Warsaw, Copenhagen, Milan, Dubai, Dublin, Helsinki, Zadar, Stuttgart, Sofia, Athens, Malaga, Lisbon, Madrid, Bratislava, Malmo, and more.

By Bus & Train

Zagreb’s main station is also the largest station in Croatia as a whole and forms the primary hub of Croatia’s railway network. Located 1km south of the city’s main square, it runs direct services to major European cities such as Vienna (6 hours), Budapest, Zurich, Munich, Salzburg, Ljubljana, Sarajevo and Belgrade, as well as domestic services to all major towns (except Dubrovnik). Hrvatske željeznice (Croatian Railways) are the main provider of rail services from the station.

The bus station in Zagreb offers fast and safe transportation to all destinations in Croatia as well as to many bigger European cities.

From Zagreb Airport

There is a bus link between the main airport (Zračna luka) and the main bus station (Autobusni kolodvor) in Zagreb. From the bus station in downtown Zagreb, you can connect to the city’s trams, which have a major terminal just down the street. The journey from the airport to the main bus station should take around 25 minutes. The bus leaves the airport every thirty minutes between 8:00 am-8:00 pm. In the hours between these, there is a bus leaving for Zagreb bus station every time a Croatia Airlines plane arrives. Additionally, there are buses run by Croatia Airlines/Eurolines.

COVID -19 Measures

To learn about the latest COVID-19 measures in Croatia and COVID-19-related requirements to enter the country, please visit Re-open EU.

Nearest treatment centre for Rare Bleeding Disorders

Please find the details of the nearest Treatment Centre below:

University Hospital Centre Zagreb

Clinical Haematology Department

KBC Zagreb Rebro, Kišpatićeva 12, 10 000 Zagreb

Contact:

  • +385 1 2376 340,
  • In case of an emergency, please call 112

Directions to this Treatment Centre from the Conference Hotel are available here.

If you are an EU national, please do not forget to bring with you your European Health Insurance Card.

General Information

Please visit this link for useful information and advice when planning your trip and to help you make the most of your stay in Zagreb.

Climate

The average daytime temperature in Zagreb in October lies at 16.0°C (60.8°F). The average minimum temperature goes down to around 6.0°C (42.8°F) (often the minimum temperature is noted at night).

Rainfall during October is moderate with an average of 83mm (3.3 inches). There are generally around 11 rainy days. The sun will show itself now and again, with 130 hours of sunshine during the entire month.

Country Code and Important Telephone Numbers 

  • Country Code: +385
  • Emergency Services:
    • 192 Police
    • 193 Fire department
    • 194 Medical emergency

Currency

The Euro is the official currency of Croatia. You can check the current currency rates on this website.

Foreign currencies can be easily exchanged in banks. ATMs can be found in all parts of the city. Cash withdrawals may be made using your credit/debit card. The logos of accepted cards are shown beside the machine. Most internationally recognised bank credit cards are accepted and widely used in all hotels, restaurants and shopping malls where such payment methods are indicated.

Electricity 

In Croatia, the power sockets are a standard voltage of 220V with a frequency of 50Hz.

Insurance

The Conference Organising Committee, or its agents, will not be responsible for any medical expenses, loss, damages or accidents during the Event. We would in particular draw your attention to the cancellation policy in respect of registration fees and accommodation. In the event that, for whatever reason, the Conference has to be cancelled or postponed, the Organising Committee and/or its agents will be responsible only for the refund of monies received. We recommend that delegates insure themselves for medical and cancellation charges.