Registrations for the EHC 2021 Virtual Scientific Conference are now open!
Welcome to the EHC 2021 Virtual Conference
The European Haemophilia Consortium (EHC) is delighted to welcome you to another edition of its virtual scientific conference. Due to the ongoing global pandemic, our Steering Committee has decided to prioritise our community’s safety by continuing to hold our scientific conference virtually in 2021. However, as always, we will do our utmost to provide you with engaging and informative content from the comfort of your home. We are thrilled to share with you the preliminary programme.
The conference will open on Sunday 3rd October at 19.15 hrs CEST. This will be followed by a symposium and networking event. The conference scientific programme will go from Monday 4th to Friday 8th October 2021.
Follow-us on social media or subscribe to our mailing list for further updates with speakers’ names and more.
When?
3-8 October 2021
For whom?
Open to all!
Conference language:
English with live Russian interpretation
Programme at-a-glance
| Sun 3 October | Mon 4 October | Tue 5 October | Wed 6 October | Thu 7 October | Fri 8 October |
| 19.15-19.30 hrs CEST | 18.00-19.15 hrs CEST | 18.00-19.15 hrs CEST | 18.00-19.15 hrs CEST | 18.00-19.15 hrs CEST | 18.00-19.15 hrs CEST &
20.15-20.30 hrs CEST & |
|
Conference Opening |
WBD & VWD: “From principles to practice” |
Pipeline perspectives |
Patient choices and preferences
|
Going the distance | Late-breaking
& Closing |
| Sun 3 Oct | Mon 4 Oct | Tue 5 Oct | Wed 6 Oct | Thu 7 Oct | Fri 8 Oct |
| 19.30-20.15 hrs | 19.30-20.15 hrs | 19.30-20.15 hrs | 19.30-20.15 hrs | 19.30-20.15 hrs | 19.30-20.15 hrs |
| Sanofi | Sobi | Roche | BioMarin | Takeda | Bayer |
|
Thrombin generation: The goal of all haemophilia treatments
|
Take Control: Empowering an Active Life |
Let’s learn from each other: Delivering effective community-driven education for those with rare bleeding disorders.
|
Patient Advocacy: Activating Access to Innovation in Haemophilia
|
Comprehensive care: Telehealth and the future of shared‑decision making in rare bleeding disorders.
|
Improving Control: Utilizing Innovation to Empower the Haemophilia Community |
Times are CEST
The EHC 2021 Annual General Assembly will be taking place on Sunday 3 October from 17.00 to 19.00 hrs CEST. This event is open to EHC National Member Organisations only. For more information and to register, please get in touch with Saskia Pfeyffer at the EHC office.
Although this year’s EHC Conference will be held virtually, we will be trying to capture this event’s community spirit by holding short virtual networking events every night following the main conference. Join us from Sunday 3 to Friday 8 October from 20.15 to 21.00 hrs for a chat and a chance to meet and ask your questions to the speakers, moderators and EHC community.
Speakers and moderators
Conference Registration
Conference Organising Committee
- Amanda Bok, EHC CEO
- Declan Noone, EHC President
- Minette van der Ven, EHC Vice-President
- Miguel Crato
- Jo Eerens
- Naja Skouw-Rasmussen
- Thomas Sannié
- Diana Lighezan
- Stefan Radovanovic
Scientific Committee
- Prof Jan Blatny
- Prof Michael Makris
- Declan Noone
- Prof Johannes Oldenburg
- Prof Flora Peyvandi
Conference Secretariat
www.conferenceorganisers.ie
Sponsors
The EHC wishes to thank the EHC 2021 Virtual Conference Sponsors for their support.
Platinum Sponsors
CSL Behring, Roche, Sanofi, Sobi and Takeda
Gold Sponsors
BioMarin, Novo Nordisk and Pfizer
Silver Sponsors
Bayer, Kedrion, Spark and UniQure
For sponsorship opportunities, please contact Amanda Bok, EHC CEO.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
