We are pleased to invite you to the annual EHC Leadership Conference that will take place in Brussels, Belgium from Thursday, 6 June until Sunday, 9 June 2024.
The objective of the EHC Leadership Conference is to provide our NMOs the time to discuss issues that matter to them and are currently important to the bleeding disorders community, as well as to benefit from each other’s strengths, experiences, and best practices. Besides, it is crucial to experience the learning process through doing, therefore, where relevant, interactive and engaging elements will be embedded in the programme.
+++Please note that the Extraordinary General Assembly of the EHC will be held on Friday, 7 June from 11:00 AM.+++
| What | EHC Leadership Conference 2024 |
| When | 6-9 June 2024 |
| Where | Brussels, Belgium |
| For whom | Up to 2 representatives, ideally from the below categories:
OR
We are aware that these categories are limiting and therefore we will leave the NMOs the choice to send the representatives who will benefit from the Leadership Conference the most and through that bring added value to the NMO. When selecting your delegates to the Leadership Conference, please keep in mind that the EHC Extraordinary General Assembly will be held as well and will require voting. |
| Language | English (simultaneous interpretation into Russian will be ensured, depending on the needs of the participants) |
| Programme | Consult the preliminary programme in English here and in Russian here |
| Registrations | Registrations are now open. Please notify your NMO of your interest in attending this event. |
| EHC staff contact person | Zita Gacser (zita.gacser[at]ehc.eu) |
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
