The European Haemophilia Consortium (EHC) will hold its webinar on New Technologies for Haemophilia and other Rare Bleeding Disorders virtually over four dates in November (10-12-17-19). The workshop will be held in English. Registrations are only open to EHC members. 

Tuesday 10 November – 18.00-20.00 hrs CET

In this session we will look at:

  • Updates on novel replacement therapies,
  • Discussions on efficacy, inhibitor development, safety issues and post-marketing surveillance

Thursday 12 November – 18.00-20.00 hrs

In this session we will look at:

  • Review of novel non-replacement therapies,
  • Discussions on safety, efficacy, thrombotic event reporting and use of NRT in rare bleeding disorders,
  • Review of the use of NRT in surgery and other special cases.

Tuesday 17 November – 18.00-20.00 hrs 

In this session we will cover:

  • Review of updates in gene therapy,
  • Experience with adenoviruses,
  • Experience with lentiviruses and genetic editing,
  • The future of gene therapy and gene editing.

Thursday 19 November – 18.00 to 20.00 hrs CET

In this session, we will talk about:

  • Hub and spoke model for the delivery of haemophilia care,
  • Financial assessment of haemophilia therapies,
  • Shared decision-making.