The European Haemophilia Consortium (EHC) is pleased to announce that its first Round Table of Stakeholders will be held in the morning of 18 February in Brussels. The topic of this event is ‘Haemophilia Registries and Outcomes.’ Through this event we want to discuss the use of the potential and challenges of haemophilia registries for regulatory and clinical purposes. The event will also look at the importance of patient-reported outcomes in particular when assessing novel and innovative haemophilia therapies.

Here below, you will find further information about the event and how to register. We hope to see many of you in Brussels.

What: Round Table of stakeholders on Registries

When: On 18 February 2020, from 10.00 to 12.00 hrs

Where: European Parliament, PHS 1C47

Language: English

For whom: EHC Members and stakeholders

Event programme: Consult it here

Registration: Registrations are now closed

For more information: Write to Laura Savini (

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