The next EHC Conference on Women and Bleeding Disorders will take place on 28-30 May 2021 in Basel, Switzerland. More information about this conference will come in late 2020. To keep updated with our news and events, sign-up for our mailing list.
Thursday 28 May from 13.00 to 14.30 hrs CEST
EHC Online Webinar on the Management of Heavy Menstrual Bleeding
This webinar will look at:
- The basics: ‘How do periods change from adolescence to menopause?’
- What does a normal menstrual cycle look like and how it is impacted by issues in coagulation?
- Case-studies on how to manage your periods in different situations including:
- Getting a teenager ready for her first period.
- Managing heavy menstrual bleeding – what are the options?
- Planning to get pregnant – how do you stop contraception and manage your periods.
- Reaching menopause – what to expect and how to manage it?
Friday 29 May from 10.00 to 11.30 hrs CEST
EHC Online Webinar on the Place of Women in Haemophilia Comprehensive Care
This webinar will look at:
- What is comprehensive care and why it is important in rare bleeding disorders?
- What are some of the issues faced by women to access comprehensive care services? – Discussion between a clinician and patient.
- Case studies on initiatives that have worked and have helped to better include women in CCC?
- Strong WBD committee and cooperation with clinicians,
- EAHAD survey – Highlight some of the structural barriers,
- Joint clinics – how does it work?
CONFIRMED SPEAKERS and MODERATORS
Rezan Abdul-Kadir, Consultant Gynaecologist, Royal Free Hospital, London, United Kingdom
Yannick Collé, Member, EHC Women and Bleeding Disorders Committee, France
Michelle Lavin, Clinical Lead for coagulation haematology research in Irish Centre for Vascular Biology at the Royal College of Surgeons in Ireland
Diana Lighezan, Member, EHC Women and Bleeding Disorders Committee
Declan Noone, President, EHC, Ireland
Debra Pollard, Lead Nurse Specialist, Royal Free Hospital, London, UK
Naja Skouw-Rasmussen, Member, EHC Steering Committee, Denmark
Malin Svennefalk, Nurse, Karolinska University Hospital, Stockholm, Sweden
Karin Van Galen, Consultant Haematologist, Van Kreveldkliniek, University Medical Centre Utrecht, The Netherlands
Thynn Thynn Yee, Associate Specialist, Katherine Dormandy Haemophilia Centre, Royal Free Hospital, London, UK
The EHC Women and Bleeding Disorders webinars are made possible thanks to the support of the following sponsors:
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
