The EHC will be holding a workshop on New Technologies in Haemophilia and other Rare Bleeding Disorders on 19-21 November. This event will look at:

  • Replacement therapies,
  • Non-replacement therapies,
  • Gene Therapy, and
  • The organisation of care and financial aspects.

This event is only accessible to EHC members (i.e. patient representatives and clinicians working with EHC members). On-site registrations have now closed, however, you can still register for online attendance. For information on how to register online, please refer to your National Patient Organisation. Organisation.

During the workshop, EHC, together with the European Association of Haemophilia and Allied Disorders (EAHAD), will hold a Round Table on the ‘Hub and Spoke model in gene therapy in haemophilia.’ This event will be held on Saturday 20 November from 16.30 to 18.15 hrs CET. This event is open to all and you can register online here. Please see below the Round Table programme.