The ERIN Summit 2022 will take place in Barretstown, Ireland from Thursday 1 December in the evening until Sunday 4 December at lunchtime. The purpose of the ERIN Summit is to offer a special time and space for all – people with extremely rare bleeding disorders and people with haemophilia who have inhibitors, as well as their family members and caregivers. Besides the community building aspect, the ERIN Summit will also offer possibilities to the participants to educate and empower themselves and to improve the quality of their lives. In addition, the Summit will be the place to spend time in a relaxing environment and enjoy activities together. Please see below for more details!
What: European Rare and Inhibitor Network (ERIN) Summit
When: 1-4 December 2022. The programme will start on at 17:30 on 1 December and end at lunchtime on 4 December.
Where: Barretstown, Ireland
Event language: English, with interpretation into Russian
For whom: The ERIN Summit will be an event dedicated exclusively to people with haemophilia and inhibitors, and extremely rare bleeding disorders, their caregivers and family members. We kindly invite each NMO to send up to 4 individuals in total from the below categories, respecting the outlined quota (a maximum of 3 individuals affected by an inhibitor and a maximum of 2 individuals affected by an extremely rare bleeding disorder).
Programme: Consult the draft programme here.
Registrations: Registrations for this event are OPEN and will close on 1 November 2022. Please contact your NMO if you wish to register!