Since 2015, the EHC has organised annual Leadership Conferences to bring multiple generations of patient organisations’ leaders and staff members together for exchange of experiences, best practices and to share positions on common issues and challenges facing the European haemophilia community. Each year the programme consists of a mixture of presentations by leading health care professionals, interactive training and peer-to-peer sessions.

When: June 7th – 10th, 2018

Location: Thon Hotel, Brussels, Belgium

For whom: We kindly invite our NMOs to send 2-3 representatives from the below categories:

  • One senior NMO leader (e.g. President, Vice-President, etc.)
  • One young NMO leader (up to 30 years) who is committed to your NMO (e.g. youth group, etc.), for example this might be the person you sent or wanted to send to the EHC’s Youth Leadership Workshop, or it could be another young person.
  • One paid staff person – if you have such a position – This person should be involved in high-level decision-making or programmes (e.g. CEO, Director, Communications or Programmes Manager) and should not be a person on a specific service contract such as accountants, office assistants, etc.

Event programme: Please find a draft programme here.

Registration: Registration is now open and can be done through the following link. Registration closes on Sunday, April 29th. Participant travel and accommodation are covered by the EHC.