On 30 November 2015, the European Haemophilia Consortium (EHC) organised a Round Table on ‘Mild and Moderate Haemophilia.’ The event looked at the challenges faced by patients, patient organisations and medical professionals to diagnose, treat and engage with patients suffering from these less severe forms of haemophilia.
Although patients with mild and moderate haemophilia are less at risk of bleeds, thanks to the higher level of clotting factor present in their blood, they still need to receive specialised care during situations that are more likely to lead to a bleed such as trauma and surgery. Furthermore, people with mild and moderate haemophilia are also at risk of developing inhibitors leaving them more vulnerable and potentially leading to disability and death.
This event covered some of the major challenges faced by people with mild and moderate haemophilia such as diagnosis, access to proper treatment and inhibitor development. We will also look at the specific needs of this patient population such as the safe practice of sports.
To consult the material distributed during the event and further resources go to the Library Section.