In light of the current COVID-19 pandemic, it is with great sadness that the EHC Steering Committee has decided to cancel all EHC events until June 2020 included. Therefore, the EHC World Haemophilia Day Live event will not take place.

Instead of a face-to-face event, the EHC will mark World Haemophilia Day through a series of online videos, articles and podcasts spread out throughout the week of 20-24 April. 

Find out more on this virtual World Haemophilia Week programme of activities here below! 

EHC Virtual World Haemophilia Week Programme

Monday – 20 April

The Importance of Patient Engagement and Community InvolvementOlivia Romero-Lux

Tuesday – 21 April

Discussion on Future Perspectives and Bleeding Disorders Treatment Options – Declan Noone; Prof. Flora Peyvandi; Brian O’Mahony

Wednesday – 22 April

Introduction to EHC Working Groups and Committees – Jim O’Leary; Naja Skouw-Rasmussen; Clive Smith; Manon Degenaar-Dujardin

Thursday – 23 April

EHC 2018 Annual Report – release and overview

During this World Haemophilia Week, we commemorate and celebrate the vibrance of our community, their individual strengths and what through their collective efforts, they can achieve. The EHC itself is proof of this. For this reason, we proudly circulate our 2018 Annual Report as part of our World Haemophilia Week’s programme. We draw special attention to the 70% increase in volunteer contributions we saw in one year’s time, and invite readers to see what these contributions have achieved, and on which foundations we continue to build.

Friday – 24 April

Introduction to EHC Exhibition “Open the Door to Another Reality”Kristine Jansone; Amanda Bok

Visit the Exhibition Project page and open the first 3 doors.

EHC Virtual World Haemophilia Week was made possible thanks to the sponsorship of Sobi