To mark this year’s World Haemophilia Day, an international remembrance to raise awareness about haemophilia and other rare bleeding disorders, the EHC will host a virtual World Haemophilia Week from 12 to 17 April.
We will release a podcast episode discussing and reviewing an ongoing and relevant issue for the bleeding disorders community each day.
Today, we also have Jo Eerens, EHC Steering Committee Member, welcoming us and highlighting the various topics we will discuss throughout our World Haemophilia Week podcast celebrations!!
Monday, 12 April – Community Day
Today’s podcast puts the von Willebrand Working Group in the spotlight.
Join us to hear Manon Degenaar Dujardin; EHC SC Member and Chair of the VWG, Prof. Michelle Lavin; Consultant Haematologist at the National Coagulation Centre in Dublin and Fiona Brennan, EHC Community Programmes Officer discuss the newly released international VWD Guidelines on Diagnosis and Management, and also their hopes and expectations for treatment and care in the future.
Tuesday, 13 April – Technology Day
Join us for a fascinating discussion on the future of technology and how to improve access to care.
Wednesday, 14 April – Science Day
Stay informed and join us for an update the development of novel and gene therapies for haemophilia and other rare bleeding disorders.
Thursday, 15 April – Public Policy Day
We will delve into the public policy work of the EHC and talk about projects influencing the rare disease space.
Friday, 16 April – EHC Day
Find out what’s new at EHC and lean in into the workings of the organisation.
Saturday 17 April – World Haemophilia Day – Closing video
Don’t have time to listen to all of our podcasts? Then get a quick recap of the week by watching the short closing video.