“Build your leaders and you will have a vibrant community that will accomplish change.”

From April 7th – 9th, the European Haemophilia Consortium (EHC) held its fourth Youth Leadership Workshop in the vibrant city of Amsterdam. Under the now-traditional title of “Speak Up, Stand Out, Join the Conversation,” this years’ workshop was designed to equip participants with strategies on how to be more actively involved in their National Member Organisations.

Sixteen participants between the age of 21-30 were welcomed and brought the diversity of Austria, Estonia, Finland, France, Germany, Ireland, the Netherlands, Portugal, Romania, Serbia, Slovakia and Switzerland together. Their energy and enthusiasm for learning how to join their local organisations in moving forward made it obvious that the future of haemophilia is in good hands. For three days, they were involved in activities that combined presentations from experienced trainers with practical and interactive exercises that consolidated the skills they had learned. The themes of the workshop focused on how to engage and retain volunteers, internal and external communication, including engagement with the pharmaceutical industry, and strategic planning and managing of a project.

Outside the “classroom,” real-life experience took over as friendships were easily formed and participants talked freely about every-day experiences and challenges.

The weekend was quick to end but a lot was gained. We are excited to welcome a new class every year, but just as important is retaining the bond we formed with each previous group. Participants are encouraged to continue their involvement and attend other EHC events, such as our Leadership Conference and EHC Annual Conference, and some have become members of various EHC committees.


For all pictures from the event, please visit our Facebook page.