EHC is pleased to announce that the call for nominations for your youth members to participate in the EHC Youth Leadership Workshop 2022 titled “Stand Up, Speak Out, Join the Conversation” is now open. It is hoped that the workshop will be held in person from 8-10 April 2022 in Amsterdam, The Netherlands (this will be subject to review based on recommendation & restrictions closer to the date of the workshop).

The 2022 workshop will seek to equip the participants with tools and strategies to be more actively involved in their NMOs in various ways. The workshop will be thematically built on three modules: volunteering and youth engagement in the NMO; strategic approach to the work of a patient organisation; engagement with the pharmaceutical industry and other external stakeholders.

The programme will consist of a combination of interactive presentations by experienced trainers, alongside many practical and interactive exercises, which will help the participants to consolidate the knowledge gained. You can see the first draft of the programme: YLW2022_Programme-Prelim_2022

The workshop is intended to be beneficial both to the participants and the nominating NMOs by supporting the growth and development of NMOs’ volunteer communities. Therefore we ask you only to nominate candidates who meet the following criteria:

  • Is a patient with, or carrier of, haemophilia, VWD or another rare bleeding disorder;
  • Is between 21-30 years old;
  • Has at least one-year demonstrated existing or prior commitment to the NMO;
  • Is fluent in written andspoken English and can actively engage in the interactive training of the workshop;
  • Will actively participate in the training and any requested follow-up activity or reporting;
  • Has the capacity to stay actively involved or become further engaged with your NMO, as well as the ability to engage other youth;
  • Is available and willing to travel to Amsterdam, The Netherlands during the dates Friday 8th – Sunday 10thof April 2022, please consult preliminary programme for specific timings.

There is no limit to the number of nominations each NMO can submit. However, there are only 16 slots available in the workshop. The EHC Youth Committee will review all the applications. Candidates will be selected based on merit, taking into account the criteria outlined above. Individuals who have already participated in previous EHC Youth Leadership Workshops are discouraged from applying. Individuals who have previously applied but were not selected and, therefore, did not participate in previous Youth Leadership Workshops are invited to re-apply if they still meet the criteria.

When: 8-10 April, 2022

Where: Amsterdam, The Netherlands

For whom: EHC National Member Organisation representatives only

Registration: Open now! Deadline for nominations is Friday 21st January 2022

Please send your complete nominations to by 21st January 2022 at the latest; nominations must include:

  • Duly completed Nomination Cover Form_2022;
  • A motivation letter was written by the candidate, outlining his/her experience with the NMO or other relevant experiences, motivation to participate in the workshop and future aspirations with regards to the NMO and haemophilia community;
  • A letter of recommendation from the NMO President.

Language: English

For more information: Write to Fiona Brennan.