EHC is pleased to announce that the call for nominations for your youth members to participate in the EHC Youth Leadership Workshop 2024 titled “Stand Up, Speak Out, Join the Conversation” is now open. The workshop will be held in person from 5th – 7th April in Brussels, Belgium.

The 2024 workshop will seek to equip the participants with various tools and strategies to be more actively involved in their NMOs. The workshop will be thematically built on three core modules: volunteering and youth engagement in the NMO, a strategic approach to the work of a patient organisation, and engagement with the pharmaceutical industry and other external stakeholders.

The programme will consist of a combination of experienced trainers’ interactive presentations and many practical and interactive exercises, which will help the participants consolidate the knowledge gained. You can see the draft programme hereYLW2024_Programme_2024

The workshop is intended to benefit both the participants and the nominating NMOs by supporting the growth and development of NMOs’ volunteer communities. Therefore we ask you only to nominate candidates who meet the following criteria:

  • Is a patient with, or carrier of, haemophilia, VWD or another rare bleeding disorder or has at least one-year demonstrated existing or prior commitment to the NMO;
  • Is between 21-30 years old;
  • Is fluent in written and spoken English and can actively engage in the interactive training of the workshop;
  • Will actively participate in the training and any requested follow-up activity or reporting;
  • Has the capacity to stay actively involved or become further engaged with your NMO, as well as the ability to engage other youth;
  • Is available and willing to travel to Belgium during the dates Friday 5 to Sunday 7 April 2024, please consult the preliminary programme for specific timings.

There is no limit to the number of nominations each NMO can submit. However, there are only 16 slots available in the workshop. The EHC Youth Committee will review all the applications. Candidates will be selected based on merit, considering the criteria outlined above. Individuals who have already participated in previous EHC Youth Leadership Workshops are discouraged from applying. Individuals who have previously applied but were not selected and did not participate in previous Youth Leadership Workshops are invited to re-apply if they still meet the criteria.

What Youth Leadership Workshop 2023
When 5-7 April 2024
Where Brussels, Belgium
For whom Volunteers from EHC members aged 21 to 30 years old.

Participants must:

  • be a patient with- or a ‘carrier’ of a rare bleeding disorder or have at least one year of a demonstrated existing or prior commitment to the NMO,
  • be fluent in written and spoken English and can actively engage in interactive workshops,
  • have the capacity to stay actively involved or become further engaged with their NMO and engage with youth,
  • be available and willing to travel to the workshop in Brussels, Belgium, on the stated dates.
Language English
Programme Consult the preliminary programme 
Registrations To nominate their candidate, NMOs must send the following documents to Fiona Brennan by Friday, 26th January 2024, at the latest:

  • A motivation letter, written by the candidate, outlining his/her experience with the NMO or other relevant experiences, motivation to participate in the workshop and future aspirations with regards to the NMO and haemophilia community;
  • A letter of recommendation from the NMO President;
  • A nomination cover form: Nomination Cover Form_24.


EHC staff contact person Fiona Brennan