As of January 2023, that’s how you’ll come to know most of our EHC team. In part prompted by the global workplace-shifting pandemic. But primarily driven by the EHC staff team growing to ten members in ten years. This year we underwent an organisational change. Having arrived at our (original) target size – of ten – it was time to reassess where we were, where we wanted to enable the team to go, and how to get them there.
First, we re-examined our organisational culture. After all, we had been in start-up mode for many years. Tapering into something more stable, what did we want to keep – what to release – and what to gain? We enlisted the support of external organisational coach Svetoslava Stoyanova who worked with our team individually and collectively over six months and then shared her broad views and findings with our Steering Committee.
Second, we reimagined our organisational structures so that what we do as a staff team (and what we call what we do) remains in the service of who we are – culturally speaking – not just as a team but as a mirror of the patient community we serve.
It may come as no surprise to many that, in terms of organisational culture, we reaffirmed ours to be an even mix between a people-centred, growth-focused ‘collaboration culture’ and an entrepreneurial, dynamism-fueled ‘create culture’. The first is characterised by flexibility, a fast pace, and an emphasis on constant innovation and change. The second is characterised by close-knit individuals with a common purpose, mutual value regardless of position/level, and a growth-minded environment – in substance, not in size. In short, cultures that believe and invest in people and their continuous personal and professional development.
So how do we ensure we practice what we preach? We reaffirmed our horizontal organisational structure. And we moved from traditional ‘job titles’ – and descriptions – to cross-cutting ones. We created broad focus ‘leads’ and combined them with rotating portfolios of mix-and-match responsibilities across five thematic areas, subject to evolve over time.
Want to know more? Reach out for a virtual coffee or swing by our office, our door is always open to you.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
