The EHC team is thrilled to announce that, from the 22nd to the 24th of April, we will participate as an exhibitor at the WFH 2024 World Congress in Madrid, Spain. This year’s edition is hosted by Federación Española De Hemofilia.
Join EHC Staff and Steering Committee members at Booth 29 of the IFEMA Convention Centre to connect with them face-to-face and gain valuable insights on our community, projects, and advocacy activities to enhance people with bleeding disorders’ quality of life.
At our booth, you will get the chance to participate in the EHC NMO Lottery! The prize? ONE free registration to the EHC Annual Conference 2024 in Sofia (including social events like gala dinner and city tour), and a travel grant up to €300 (reimbursement upon submission of receipt). Please note that the prize will be awarded to only ONE NMO, not to any individual. The winner NMO will be randomly drawn from the registered participants and announced by EHC at the end of WFH 2024.
Additionally, during the Congress, EHC will hold a special session open only to the EHC National Member Organisations (NMOs) – we warmly remind all our dear NMOs to register for the event and join us in Madrid!
WHAT: EHC Session at the WFH 2024
WHERE: Meeting Room N109, IFEMA Convention Centre, Madrid, Spain
WHEN: Monday, 22 April 2024, 8:00 – 8:50 AM CEST
Find more information and register for the WFH Congress 2024.
And, at the end of the Congress, EHC is inviting its NMOs to a karaoke session on Wednesday, April 24, from 8 to 11 PM, at the En-Tono Lounge Bar. Let’s end the finest gathering of the worldwide bleeding disorders community with some fun all together!
What is the WFH 2024 World Congress?
Since 1965, the WFH World Congress has been held by the World Federation of Hemophilia (WFH) every two years in a different region. As the most comprehensive international event on bleeding disorders, the WFH 2024 contributes to the mission of improving and sustaining care for people with inherited bleeding disorders worldwide.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
