IMPORTANT INFORMATION FOR OUR NMOs
Everything in the right order
Most European countries have established centralised systems to welcome and care for refugees. The EHC are strongly recommending that people arriving from Ukraine establish their first contact with these official systems, so that all the available support, such as accommodation and food, as well as the essential documentation and legal advice, is fully accessible to them!
Bleeding disorder patients arriving from Ukraine are being advised to inform the receiving authorities about their bleeding disorder, so that the necessary steps can be taken, among them contacting the treatment centre and the national patient organisation. Updated information on treatment centres in Europe been communicated to our network in the Ukraine and can also be found on www.hclocator.org.
If you have not already done so, we invite you – our NMOs – to proactively contact the authorities/organisations in charge of welcoming refugees and ask them to contact you immediately once a person with a bleeding disorder is identified!
We at EHC are trying to keep track of those people with bleeding disorders on the move, so that they don’t fall through the cracks, and will check with you regularly to ask who is on your radar.
Many common drugs, as well as haemophilia treatment products may have different names in the EU, or simply may not be used in the EU countries.
Matching the needs with relevant support
The EHC has received requests from many of you asking what can be done to help. We are in frequent contact with the members of our community in Ukraine, as well as with the NMOs receiving displaced families into their countries. This way we try to stay aware of changing needs.
We have developed a form that our NMOs can fill in to indicate the support they are in a position to offer todisplaced individuals / families. Once we have identified where this support can be used, we will get in touch with you!
Solidarity among EHC NMOs
In light of the worsening humanitarian situation in Ukraine and the hundreds of thousands of people fleeing to neighbouring countries, the European Commission has set up a dedicated European system for swift transfers of persons in need of medical care among EU Member States. As the situation unfolds and the number of persons fleeing the war continues to increase, it is crucial to ensure that refugees and displaced persons receive the healthcare that they need, and that Member States health systems, in particular those in countries bordering Ukraine, are not overwhelmed. Read more here.
The EHC is ready to support our NMOs, whether with filing in requests for transfer, preparing to receive patients and their families that are ready to be transferred, or other needs.
This draft template letter can be used to help a patient (and their family) be transferred to the country of the receiving NMO, as well as a draft template letter requesting to start the process of transfer in the country of (temporary) hosting NMO.
Emergency Displacement Fund
The EHC have launched a short-term* funding stream called the Emergency Displacement Fund to help support NMOs who are dealing with the direct displacement of people with a bleeding disorder and their families from situations of armed conflict. A simple application process with rapid assessment has been established. Decisions will be made on a case-by-case basis based on the prevailing context.
The funding is intended to help our NMOs supply critical items for displaced people with bleeding disorders entering their country and coming under their care, for example, but not limited to:
- Travel to a town/city with a haemophilia centre
- Initial accommodation if required (for maximum 14 days) while receiving bleeding disorder care
- Provision for communications with treatment centres (e.g. call charges, calling cards, power banks, etc.)
- Non-prescription medicines (excluding factor or non-factor concentrates)
- Medical equipment (e.g., feminine hygiene products, crutches, mobility aids)
- Provision of psychosocial support for families
- Additional support deemed necessary by the NMO can be applied for with a justification
For more information on the Emergency Displacement Fund please contact Fiona (fiona.brennan[at]ehc.eu) or Kristine (kristine.jansone[at]ehc.eu) who will prioritise supporting you.