Manon Degenaar-Dujardin is from the Netherlands and has severe Von Willebrand disease, inherited from both her parents. She is the mother of two sons who both have Von Willebrand disease.
Since 2000 she has been active as a volunteer in the haemophilia community in the Netherlands and internationally in various roles. She participated in youth activities and committees supporting women with bleeding disorders and people affected by Von Willebrand disease. She is the Vice-President of the board of the EHC Dutch National Patient Organisation (NMO). From 2008-2012 she was the CEO of the Dutch NMO. She contributed to the HKZ certification of the haemophilia treatment centres in the Netherlands, creating the first national haemophilia guideline and the Von Willebrand Study in the Netherlands.
Since 2020, Manon is both a member and the chair of the EHC Von Willebrand Working Group. She was co-opted to the EHC Steering Committee in 2021.
Manon works as a consultant for the government and has a degree in museology, art history and public administration.