Miguel Crato – Steering Committee Member
Miguel Crato was the President of the Associação Portuguesa de Hemofilia e de outras Coagulopatias Congénitas, the Portuguese National Member Organisation (NMO) of the European Haemophilia Consortium (EHC), from 2013 to 2020. Since October 2016, he has been a member of the EHC Steering Committee. He has been a keynote speaker at several EHC events, including the World Haemophilia Day event held in April 2014 at the Paul-Ehrlich-Institut in Frankfurt, Germany, giving insights into the importance of the patient perspective on the recommendations for the treatment of haemophilia emanating from the Wildbad Kreuth Consensus Initiative. These recommendations were later adopted as a resolution by the health ministers of the Council of Europe.
Miguel has also been a member of the EHC Inhibitor Working Group (IWG) since its inception in 2015. IWG aims to develop a European Inhibitor Network to bring together people affected by this rare bleeding disorder and inhibitors, develop best practices for the treatment and management of inhibitors, combat social isolation and promote better access to treatment and care.
As a volunteer, Miguel’s biggest priority has been to empower and help members of the rare bleeding disorder community achieve self-determination and approach their condition positively.
Miguel is a professional legal adviser and has severe haemophilia A and inhibitors.