3 December 2014

The European Haemophilia Consortium held on 1 December its last round table of the year on ‘National Haemophilia Councils: From concept to reality’. The event was hosted by Members of the European Parliament, Mrs Nessa Childers and Dr Cristian Silvu Busoi in the European Parliament in Brussels.

Over 40 participants came together to hear about the benefits of national haemophilia councils, which are formal or informal bodies involving patients’ representatives, government officials, payers and clinicians to organise haemophilia care in a given country. The benfits of such bodies is patient involvement and patient-centredeness in the organisation and delivery of healthcare services.

During the event participants heard from case-studies in Ireland, the UK, Romania and Poland as well as from a representatives of the European Patient Forum on the benefits of patients involvement and empowerment.

Consult the article on the Round Table on National Haemophilia Councils in the EHC December 2014 Newsletter.