The European Haemophilia Consortium (EHC) is looking for an experienced, analytical and passionate European Public Policy Lead to join its small, dynamic team of staff and volunteers.

What about this role at the EHC?

The European Haemophilia Consortium (EHC) is an international patient-led and non-profit organisation representing 48 national patients’ organisations (NMOs) for people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC team is currently composed of a small group of 7 individuals of multiple nationalities. The team’s work is co-implemented together with a large network of volunteers, consultants, and service providers. The EHC was founded in 1989 but has recently undergone substantial organisational growth, now stabilising.

The ideal candidate will have some content background in public health, rare diseases and the role of civil societies in shaping health policies and legislations. They will possess excellent attention to detail, proven organisational and project management skills, and the ability to communicate eloquently and flawlessly in English with a broad range of audiences in a compelling and captivating manner. They must also be able to work flexibly and collaboratively within a close-knit team and patient community in cross-cutting ways.

Check out the job profile and conditions here.

How to apply?

Applications should be submitted to Zita Gacser, EHC Behavioural Change Lead, at zita.gacser[@] by Monday, 24 June 2024.

The first round of interviews will be held in early/late July 2024.

Applications should consist of all of the following:

  • Letter of motivation
  • CV
  • Range of expected gross monthly remuneration
  • Telephone and email contacts for 2 references (these will be contacted after the first interview)

Please note that incomplete applications will not be considered.

We are grateful for all applications and thank all candidates in advance for their interest, time and motivation. Unfortunately, because we are a very small team with a heavy workload, we will only contact short-listed candidates. We thank you in advance for your interest and look forward to your application.