The EHC is looking for:

Please consult the job ad here below.

The EHC is looking for a Communications Assistant to join its Brussels-based team on a part-time basis. Please consult the full ad here below.

The European Haemophilia Consortium (EHC) is looking for a creative Communications Assistant to support its small, dynamic team of staff and volunteers. 

Location: Brussels, Belgium or remotely
Reporting to: Communications Lead
Start date: February-March 2023
Remuneration: Commensurate with experience


The EHC is a small and dynamic patient umbrella organisation representing 48 national member organisations in Europe, including from all EU Member States. The EHC office team is composed of a small group of 10 individuals of multiple nationalities working out of Brussels and remotely. The team’s work is co-implemented together with a large network of volunteers, consultants and service providers. The EHC was founded in 1989 but has recently undergone substantial organisational growth, now tapering off. This P/T position is a new and previously non-existent team role.

The Communications Assistant will be primarily responsible for proactively overseeing, managing, maintaining, and optimising all systems and content across the EHC’s digital platforms (including the EHC website, Facebook, LinkedIn, Twitter, Flickr, and Instagram). The Communications Assistant will create content in collaboration with other colleagues, support the Communications team during the EHC events, run email campaigns, and keep the mailing list up-to-date.

This position will work closely with all colleagues, particularly with the Communications Lead. The ideal candidate will bring experience, big ideas and high energy, enjoy working within a larger team and be passionate about working in service of vulnerable groups in a non-profit organisation. 

Main duties and responsibilities

The P/T Communications Assistant will be mainly responsible for:

  • Creating, managing, updating and loading digital content including:
  • Text pieces, videos, pdf’s, images, graphic designs, etc.,
  • Developing new pages as needed on the EHC website,
  • Supporting digital marketing efforts, including social media,
  • Publishing across multiple content management platforms,
  • Setting up and configuring relevant information architecture and functionality components,
  • Maintaining responsive design to ensure mobile-friendly and multi-platform-ready states,
  • Eliminating duplicate content and maintaining real-time site integrity,
  • Ensuring throughout all platforms: 
  • UI consistency, quality of content, the efficiency of revisions, up-to-date sites, brand/style guide consistency, 
  • Developing and maintaining data and reporting processes,
  • Interfacing with external providers to ensure continuous site performance,
  • Reviewing, monitoring and reporting on insights and analytics,
  • Triaging bugs and trouble-shooting issues.

Qualifications and requirements

  • Minimum 2 years of work experience in content and/or website management.
  • Bachelor’s university degree.
  • Fluency in English, additional European languages considered an added value.
  • Demonstrated experience managing website content updates and publishing/editorial workflows.
  • Experienced and skilled with WordPress.
  • Familiarity with MailChimp.
  • Experience following website editorial style and standards guides.
  • Strong working understanding of web layout and presentation best practices.
  • Proven track record of delivering high-quality execution. 
  • Demonstrated ability to juggle different priorities with strong attention to detail.
  • Ability to work in a fast-paced, deadline-driven environment.
  • Strong interpersonal communication skills. 
  • Can clearly and proactively communicate with individuals across multiple cultures and professions, including patients, volunteers, healthcare providers, external consultants and service providers.
  • Resourceful, able to show initiative, self-start, be a team player, work under tight deadlines, remain flexible, and deliver under high pressure.
  • Hybrid model of working: able to work effectively and efficiently remotely as well as face-to-face.
  • Experience with email/digital marketing considered an added value.
  • Experience with non-profits and/or social causes considered an added value.

Submitting Candidatures

Applications should be submitted to by midnight on January 31st 2023.

Applications should consist of all of the following:

  • Letter of motivation
  • CV
  • Range of expected gross monthly remuneration
  • Telephone and email contacts for 3 references (these will be contacted before the first interview).

Please note that incomplete applications will not be considered

We are grateful for all applications and thank all candidates in advance for their interest, time and motivation. Unfortunately, because we are a very small team with a heavy workload, we will only contact short-listed candidates. We thank you in advance for your interest and look forward to your application.

The European Haemophilia Consortium (EHC) is looking for its next CEO. The EHC was founded in 1989 for European advocacy and ‘watchdog’ purposes. The organisation underwent significant growth and restructuring from 2013 onwards to pivot the organisation from reactive to proactive and from top-down to bottom-up. Ten years on, the EHC has become one of Europe’s most reputable and respected patient organisations, known for its professionalism, strong patient community engagement, bottom-up culture, strategic vision, and leadership in the field. Moving forward, the EHC is seeking to build on this foundation with a new five-year strategic plan and seeks a CEO to understand and further build on this culture.

The ideal candidate would have proven strategic-, leadership-, people-, organisational-, and networking skills; be able to ensure a dynamic and effective oversight of the organisation in an efficient yet human-centric manner that is empowering of others (including staff and volunteers); integrate well into a small and close-knit community of rare disease patients and families; work collaboratively and cross-functionally in support of the organisation’s non-profit, patient-community-facing culture; be strategic and forward-thinking regarding the organisation’s future; and demonstrate a strong ethical, reliable, and trustworthy character able to ensure good organisational governance.

Time:                           Full-time
Duration:                     Initially one-year to start, renewable towards permanence after the second year
Contract type:              Employee or consultancy contract possible
Location:                     Brussels, Belgium (hybrid work possible, but Brussels presence required)
Reporting to:               President
Start date:                   As soon as possible
Remuneration:            Negotiable and commensurate with experience

The CEO will be responsible for providing high-level strategic services to the EHC Steering Committee, staff, and volunteers. The CEO reports directly to the EHC President.

These services include, but are not limited to:

  • Actively contributing to the design, implementation, and regular review of the organisation’s vision.
  • Actively driving and contributing to the organisation’s strategic planning and evaluation processes.
  • Analysing the internal and external environment for changes and promoting key opportunities.
  • Communicating the organisation’s course and plans with internal and external stakeholders.
  • Externally representing the organisation at a high level, together with the President or those designated by the President.
  • Overseeing the launch, funding, and execution of new initiatives.
  • Overseeing the Operations Director, their support of staff, and their work to ensure the long-term sustainability of the organisation.
  • Consistently seeking to ensure the relevance and quality of the organisation’s work.
  • Proposing and, where necessary, developing creative new ideas, projects, ventures, or other strategic partnership opportunities.
  • Working to keep the organisation dynamic and innovative.

To this end, the CEO shall:

  • Work closely with the President, the Steering Committee, and appointed EHC leaders.
  • Support the staff team through the Operations Director.
  • Plan, implement, and actively participate in SC and other leadership meetings (ex-officio).
  • Organise and lead annual retreats, including strategic planning retreats every four years.
  • Actively contribute to key areas of work across the range of EHC’s activities, including but not limited to European health policy, patient community-building, program development and delivery, conferences and meetings, and other content needs relevant to the field.
  • Participate in and actively contribute to other high-level leadership forums, as approved by the President.
  • This portfolio is subject to evolution and was last updated on in 2022.

Qualifications and requirements

  • Minimum 7 years of professional experience in an organisational leadership role.
  • Strong English, fluency in French and/or Dutch, and other European languages, an asset.
  • Master’s degree in a relevant field, e.g., public health, international relations, health economics
  • Demonstrated ability to build and maintain networks of stakeholders, run multi-stakeholder collaborations, and successfully fundraise.
  • Excellent attention to detail and organisational and project management skills.
  • Excellent people- and team management skills.
  • Strong interpersonal, networking, and diplomacy skills.
  • Able to demonstrate vision and leadership while also maintaining flexibility, humility, and an ‘all-hands-on-deck’ attitude within the team when needed.
  • Willing to go ‘above and beyond’ for patient needs and best interests when required.
  • Able to work under tight and occasionally shifting deadlines.
  • Able to work fruitfully and professionally with multiple cultures and professions, including patients, volunteers, doctors, external consultants, and service providers.
  • Able to work on weekends (for events) and evenings (when necessary) and to travel (predominately in Europe) when needed.
  • Strong and compelling public speaker, chair, and facilitator an asset.
  • Familiarity or experience working in Brussels is an asset.
  • Familiarity or experience with European institutions and/or the non-profit sector is an asset.
  • Familiarity with haemophilia, rare bleeding disorders or other rare diseases is a strong asset.

Submitting Candidatures

Applications should be submitted to The EHC will accept applications until February 12, 2022. The first interviews are planned for February 15 and 17, 2022 face-to-face in Brussels.

Applications should consist of ALL of the following:

Motivation letter,
The expected range of desired gross remuneration,
Telephone and email contacts for three references (these may be contacted before a first interview).
Please note that incomplete applications will not be considered.

We are grateful for all applications. Unfortunately, due to high volumes of work, only short-listed candidates will be contacted. We thank you in advance for your interest and look forward to hearing from you soon.